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Hello Fellow ICers, I was diagnosed with IC in the winter of 2007. In the fall of 2006, I was experiencing a little back pain. I went to general practitioner and was given Bactrim for a UTI. Within two days, I was in extraordinary pain and constant frequency. I went to my OBGYN many times, but to no avail. After 4 months of constant burning and pain, the pain just went away.
I decided to go back to teaching after being home with my kids. Two days before Christmas break in 2007, I was sitting at my desk and started to feel that extraordianry pain. I had been eating a lot of fresh pineapple and Vitamin C drops to ward off colds, since it had been awhile since I had been around a room full of students. I was finally able to get in with a urologist who specializes in women's issues in February. I was given the dreaded news. You have Interstitial Cystitis. I had read about this illness on the internet over Christmas, but decided this couldn't be me. My worst nighttmare came true. I immediately changed to a strict diet. I did not see any improvement for quite some time. I suffered through the rest of the school year. I spent the next three years having more bad days than good. Finally, in the summer of 2010, I had some relief. I was able to get through the summer with minimal pain and frequency. Unfortunately, two days before the start of school in 2010, I went back into a terrible flare. I am still having that flare.
I have deduced over time that my flares seem directly related to anxiety or a chemical imbalance. My bladder can feel pretty good and sometimes almost normal, but I feel anxious and have a hard time concentrating. In a split second, I can feel immediate changes. I will feel wonderful and calm, but my bladder will start burning and hurting with frequency and now some leaking. I can't seem to find anyone to help me with this. I am unable to tolerate anti-depressants and anti-anxiety medicines. I am trying to figure out what is happening to cause this instantaneous switch in symptoms. I am currently taking Prelief and Detrol as needed. I do a relief instillation of Lidocaine at home every so often, but seem to get a UTI almost every time even though I do everything I can to stay sterile.
I try very hard to find the positive in IC, but this is a struggle. IC has helped me to become stronger in my faith. I am seriously considering giving up teaching since this flare just won't stop. Teaching and my children are my life. I don't want to give it up, but I am tired of hurting. I am curious if there is anyone out whose IC seems directly related to stress and possibly a chemical imbalance. I tried Elmiron, but had to throw that stuff away after the first pill. I just recently tried Aloe capsules, but found that my frequency worsened. I am very sensitive to medicines. I only wish I could find one "miracle pill." I know I seem a little negative, but it has been a hard five months.
I decided to go back to teaching after being home with my kids. Two days before Christmas break in 2007, I was sitting at my desk and started to feel that extraordianry pain. I had been eating a lot of fresh pineapple and Vitamin C drops to ward off colds, since it had been awhile since I had been around a room full of students. I was finally able to get in with a urologist who specializes in women's issues in February. I was given the dreaded news. You have Interstitial Cystitis. I had read about this illness on the internet over Christmas, but decided this couldn't be me. My worst nighttmare came true. I immediately changed to a strict diet. I did not see any improvement for quite some time. I suffered through the rest of the school year. I spent the next three years having more bad days than good. Finally, in the summer of 2010, I had some relief. I was able to get through the summer with minimal pain and frequency. Unfortunately, two days before the start of school in 2010, I went back into a terrible flare. I am still having that flare.
I have deduced over time that my flares seem directly related to anxiety or a chemical imbalance. My bladder can feel pretty good and sometimes almost normal, but I feel anxious and have a hard time concentrating. In a split second, I can feel immediate changes. I will feel wonderful and calm, but my bladder will start burning and hurting with frequency and now some leaking. I can't seem to find anyone to help me with this. I am unable to tolerate anti-depressants and anti-anxiety medicines. I am trying to figure out what is happening to cause this instantaneous switch in symptoms. I am currently taking Prelief and Detrol as needed. I do a relief instillation of Lidocaine at home every so often, but seem to get a UTI almost every time even though I do everything I can to stay sterile.
I try very hard to find the positive in IC, but this is a struggle. IC has helped me to become stronger in my faith. I am seriously considering giving up teaching since this flare just won't stop. Teaching and my children are my life. I don't want to give it up, but I am tired of hurting. I am curious if there is anyone out whose IC seems directly related to stress and possibly a chemical imbalance. I tried Elmiron, but had to throw that stuff away after the first pill. I just recently tried Aloe capsules, but found that my frequency worsened. I am very sensitive to medicines. I only wish I could find one "miracle pill." I know I seem a little negative, but it has been a hard five months.
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