Announcement

Collapse
No announcement yet.

how many here swear by IC diet

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • cmclien
    replied
    txflea - Prelief reduces the acid in foods so you can possibly eat some on the try it and caution list. For instance, I take it white wine and reduced acid coffee and pretty much everything I'm not sure of. You can get it here and at Walgreens but the best price I have found for a bottle of 300 is on Amazon. I usually buy multiple bottles to save on shipping.

    Leave a comment:


  • VickiB
    replied
    I know for me, diet isn't the only thing that can cause my IC to flare, but in hindsight I'd say diet was behind the vast majority of my flares. One thing that I learned was that following a percentage of the diet didn't help. If my diet included a trigger, even just one single thing my bladder didn't like, my symptoms continued.

    Leave a comment:


  • passion4life
    replied
    We are so much alike, yet we are all different. At first, I half-heartedly attempted the IC diet. Over time this proved to be a disaster! Since October 2010, I have stayed on a strick IC diet and I can tell a difference.


    My progress has been slow but I can feel improvements daily.


    In conjunction with the IC diet, I also take Prelief with every meal, Elmiron 3X daily, BCP, and CystoProtek. Both Elmiron and CystoProtek can be found on this site.


    Continue your search. I truly believe Light and Love will light your path and lead you to everything you need.

    Have the best day you possibly can!

    Praying for the cure

    Leave a comment:


  • txflea
    replied
    I have looked over the diet and the strange thing is I already eat 99% of these foods.

    I never drink coffee, cokes, or diet drinks. Water or juice (apple or pear, I love the taste of both) my downfall is Chocolate but I dont eat that much of it. One of the small snack size ones like once a week.

    I love fresh grown tomatoes but I have cut those way back because I was getting mouth ulcers.

    I think I am going to really give this diet a good looking at to see if I can improve my eating in any other way, if I can find something else to cut out that will help, WOOHOO!!

    What is prelief? Where can I find it and what does it do for you? I dont have pain, I have just a tingling somethings not right sensation, which sucks.

    Leave a comment:


  • Julie B
    replied
    Shaun,

    As I read back on the string of people who responded to you, I realized how many of us here help people because other people helped us....some of us a long time ago. There is a richness of wisdom here at ICN that cannot be found anyplace else.

    Twelve years ago, I was just as frantic as any newbie you see now. People reached out to me with love compassion and understanding.......

    I often say ICN saved my life back then..........

    Hang in there and let us know how the cycle menu works.

    XOXOXOX

    Leave a comment:


  • shaun10
    replied
    wow thanks guys

    So many replies and all seem to suggest im not helping myself as much as i could be. I am going to take Julie B's advice and make a month long plan off the bladder friendly list right now! then hopefully by my next appt I will see a change. Thanks guys. This site is great. Donna, Julie all you guys are a blessing I really am trying to do everything to avoid the interstim. I have found that taking my elavil middle of day helps my pain and it doesnt make me sleepy so thats a plus. I have to now get rid of that needing to go feeling next! Thanks again

    Leave a comment:


  • jawein02
    replied
    I agree with the last poster. I was really down about the diet because how much I love to cook and eat, and how much I love to experiment with food. When I was first diagnosed, I stuck to the diet faithfully and it really did help. Once my bladder calmed down I have found that I can tolerate many things from the try it list and on occasion a caution item. It's weird because things like sushi, a problem for many, does not seem to bother me if I take prelief, but bananas cause me to flare. The only way to find out is to add foods back slowly and cautiously after sticking to the diet for at least a few months. Many of us have to stick to the diet faithfully, but then again many of us have found after treatment, we can eat things that are possible triggers in a small amount. The best of luck to you! Also, don't beat yourself up too bad from straying, no one is perfect.

    Leave a comment:


  • traceann
    replied
    The diet for me was one of my biggest tools in managing my symptoms - and I had to be very strict for the longest time. Eventually I was able to "cheat" and even then I used Prelief. But, I found that for me, the more strict I was the better off I was as well. It seemed that all my "good behavior" compounded itself - the longer I was faithful to the diet, the better I felt and when I did have a cheat now and then (coffee or a bit of marinara) I wasn't too badly affected

    Leave a comment:


  • Snowden1
    replied
    I don't know why, but the diet helps me have less pain. I have to cut out a whole lot more than most people. It cuts down on the pain, but doesn't get rid of it all.

    I had a uro tell me that he didn't think diet really mattered and it certainly was not going to hurt your bladder. Yeah, right. I also had a different uro tell me to relax and go home and have a glass of wine. Both of these doctors are well known IC specialists. I find what they say in the magazines isn't always what they say in person.

    Leave a comment:


  • vanilla
    replied
    The only time I noticed a diet induced flare was after eating Indian food. I had the chicken vindaloo, a serious mistake.

    I almost forgot a box of chocolate nearly killed me, but I did eat the entire box. I would have been okay with a few
    Last edited by vanilla; 01-26-2011, 07:57 PM. Reason: forgot something

    Leave a comment:


  • VickiB
    replied
    I definitely swear by the IC Diet. That one change had the greatest effect in reducing the pain I'd been in.

    Leave a comment:


  • Julie B
    replied
    Dealing with Diet Overwhelm

    Cindi actually hit on a very important thing. Many of us got overwhelmed by the diet at first. It may help to make a two or three week meal plan based on the Bladder Friendly food. Then you can recycle those menus like hospitals and schools do!

    The other thing I suggest to patients is dedicate one night a week to a "new recipe." This can truly be trying a new bladder friendly recipe, or it can be a night where you modify an existing recipe that is a favorite of your family, taking out problem ingredients and substituting IC friendly ingredients.

    That way, you can make your experiments more exciting and you feel more in control of your diet!

    Leave a comment:


  • KatieB
    replied
    The Diet

    My pain is not gone by any means. But since I got really serious about the diet it is different. And I can truly tell when I've eaten something that hurts me, whereas before the diet, I just hurt like that all the time. The first time I REALLY noticed it was right after I had been diagnosed and found ICN and the diet (which at the time I considered a "suggestion"). I was half heartedly trying the diet and my family decided to have fast food burgers for lunch. I always have extra pickles on my burger and that's what I got. I immediately shot from a pain level of 6 to 10. And I know for a fact it was the pickles because I'm hard headed and tried it again on another day. The diet works for me. It's not a cure, it is for some people. But it helps and I'll take any help I can get right now.

    Leave a comment:


  • bubbe1
    replied
    does diet help

    For me, the diet has been a life saver. I can't tolerate most meds. so I used and still use, the diet, and am generally very careful about not cheating.
    This past week, I ate little bits of this and that which I know I can't eat, and I am paying for it now! Ouch!
    I don't drink coffee, so I can't speak to that.

    Leave a comment:


  • Linda May
    replied
    It did with me I had a cup of coffee, next morning had a cup of coffee, next day flaring.

    Leave a comment:

Working...
X