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  • Optimistic..Here is my story

    Okay I have not been diagnosed yet, but I am confident after reading these stories that this is what I have..32 yr. old female w/IBS

    Almost 2 years ago, my body started going through these episodes where I would pee and pee like every 5-10 minutes, I just thought it was my body's way of getting rid of excess fluid during my period. It would last a day, maybe a day and a half and go away. The only symptom along with the urinating would be a lower back ache, I thought it was my kidneys. I made a drs. appt, no infection, he took blood for my kidney fuction and came back excellent. He just said, maybe bladder spasms. So along with this I noticed every so often with my period, I would get pinching pains like sharp menstral cramps in my pelvis, always on my right side, again just chalked it up to my period. I would also get pressure in my butt and vaginal area like there was a baby about to fall out of me..again just chalked it up to my period.

    Okay so last Friday (jan.21st) the peeing began along with the back aches. I thought for sure it would go away but monday came, and I was in the drs. looking for an answer. He said your urine came out clean, no infection, so he said what I predicted was about my body getting rid of excess fluid since that friday was the last day of my period. He said go and drink some gatorade, your body will equal out. Tuesday came and I was fine, thinking huh he was right....

    Wednesday came and so did the peeing again...at this point Im really scared and worried that it may be something serious. I looked on the internet and found this forum, I started to feel better about what I was going through. Wednesday night I was laying in bed and found a tender spot in my abdomen around my bladder and my urethra started getting a irritated feeling. Thursday again peeing, back ache and bladder feeling irritated, called the dr. he put me on an antibiotic, I said fine I will take it. Today is monday and I still have all the symptoms. I am hoping I can find an answer to this, Im sick of peeing...Can anybody give me some insight? sorry my post was so long..

    Another little piece of information...Friday (jan.28) I was feeling great, no symptoms, no peeing nothing..Saturday again great, felt awesome up until I decided to go on my exercise bike for 30 mins. As soon as I get done, instant symptoms, urge to pee, back aches and bladder irritation, and I didn't drink water during the workout, I did afterwards but the symptoms were there, could this aggravate and bring the symptoms on, has this ever happend to anybody? Thanks for reading..
    Last edited by christinefug; 01-31-2011, 07:37 AM.

  • #2
    I did the same thing and not that it is the same problem I had, but I had a kidney stone stuck in my left ureter. The reason the urine test didn't show any blood was because the stone stopped moving and was just sitting there and the urine was having a hard time getting around the stone and some was backing up into the kidney, causing the pain. The stone showed up on a CAT scan. I had the pain forever and because I have other health problems just attributed it to that (back problems) and just learned to live with it, but when the pain got so bad I could not stand it went to the ER. I live in a small rural area in the south and like to brag that when I had the CAT scan I didn't even have to take my own cat.....(sorry but I have to laugh, I have so many problems). Anyway maybe an xray, if your doctor won't order a CAT scan. Good luck to you and I hope it is just minor.

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    • #3
      It does sound to me like the early stages of I.C. and I would definately look into seeing a pelvic pain specialist at a woman's clinic. A urogynecologist I found to be the best...over a urologist. I like the Woman's Center because they seem to be gentle and more supportive there. With my I.C. I found that staying away from real acidic foods, caffine, chocolate, and preservatives all irritated my bladder. You may want to take a break from those kind of things until you know what is going on. As far as working out goes I would recommend Yoga, Thi Chi,...things that are more relaxing yet are still good at keeping you healthy. If you do cardo..the muscles tighten up more and add to the problem of urgency, frequcency, and rention of urine. Stretching is good for the back and butt..so you might want to try that...stand up strait, knees a little bent and move pelvis in circular motions...it helps to losen the muscle a bit. IBS is terrible and very common with I.C. make sure to have a lot of fiber and you may want to add a probiotic that helps with digestion. Hope this is helpful and good luck to you

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      • #4
        I am going to try to get into the dr. again today. I am going out of town thursday - sunday and hate to leave without knowing something. Now is the tenderness spot normal with IC? That is my concern and going to get to the bottom of it. Thanks for all the information...

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        • #5
          Tenderness in your bladder is a symptom of IC. It is good you have an appt on Thursday, but just so you are aware, an IC diagnsis can take time. Some Dr's will diagnose based on symptoms but many will want to do some tests to rule out other things thatyou could possibly have. IN the meantime it would be good for you to start the IC diet and see if that will help relieve some of your symptoms. YOu can find a link to the diet on the ICN homepage. Also, be sure to drink plenty of water, this can help dilute your urine and hopefully calm that constant urge to pee.

          Good luck, I wish you the best and keep us updated.
          Sandra
          Link to the patient information, everything from What is IC? to Disability
          http://www.ic-network.com/patientlinks.html

          American Urological Association Clinical Guideline
          Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
          http://www.auanet.org/content/guidel...ent_ic-bps.pdf

          Comment


          • #6
            Thanks for the feedback, the tenderness is what really got me worried. My doctor now is treating me for a uti with negative urine, I know I have a long road ahead of me but yet determined to not let the drs. shove me aside. Thanks again and I will keep my post updated!

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            • #7
              Christine,
              One thing I would not let them do anymore is give you antibiotics. Especially if it didn't work the first time around. For me, they made things worse and doctors will continue to give them out easily because they don't know what else to do. Antibiotics for me made things worse. Unfortunately the only way to be sure I had I.C. was to have a cystoscopy with hydrodistention. It hurt like hell after the procedure but once I had it done they were able to give me treatments and at least you know for sure. The sore spot is normal for I.C...actually it is usually pressure and cramping you feel in that area. Whatever you do don't stand for a doctor saying I think it is in your head or I don't know what else I can do. I would ask for a referral at this point. This was my experience and it angered me so much. I pray you get the help you need and I also pray that it is something more simple to fix than I.C. Take care.

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              • #8
                I have an appt. at 1:50 today. I am going to see what they say, and if I don't like their approach, I am going to a urologist. I already have one picked out in my area and phone number written down. I took the antibiotics just to eliminate one step. I normally don't take meds. unless I absolutly need them, so I will not take another antibiotic. I've had many Uti's in my early 20's to know the symptoms and this is not a uti....so we'll see what they say today. Again thanks for the feedback.

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                • #9
                  Christine,
                  You were right to take them to eliminate a step as you said. Be sure to tell them what you have already taken, what strength and for how long. If possible take any records of what has been done already. I found that some Dr's are adamant about doing the tests again for themselves. So, it is best even if you don't continue seeing one Dr, collect all your records of tests and visits. Be sure to look at them first, don't let them just send them over. If any of them say anything negative about you, take them out. (you won't believe what some Dr's will write when they don't know what to do for us!) Start keeping a notebook with copies of all tests, results and procedures. I did that and it saved me a lot or trouble. Also, your insurance will not pay for repeat tests. One more lesson I learned is find out what test company your insurance uses.(for blood work etc) Make sure you always ask where they are sending your test too, you sometimes have to specify what your ins will pay. I found that out the hard way when I got sent some very high bills.
                  Not sure where you live, so maybe you haven't gone yet. If so, you will at least get my tips for later and maybe they will help someone else.

                  Let us know how it goes.
                  Sandra
                  Link to the patient information, everything from What is IC? to Disability
                  http://www.ic-network.com/patientlinks.html

                  American Urological Association Clinical Guideline
                  Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
                  http://www.auanet.org/content/guidel...ent_ic-bps.pdf

                  Comment


                  • #10
                    Email notices for Christine

                    Not that I mind at all....but I am getting email notices for Christine for posts she has made...I guess what I am trying to say is I am getting email notices about replies meant for her and I hope she is getting them too. Would hate for her to be missing out on them. Just wanted you ladies to know. I am new to the board and don't really know how the email notification function works. Thanks.

                    Comment


                    • #11
                      You are getting the email notifications because you are subscribed to this thread (having replied to it earlier).
                      Everyone who is subscribed to the thread gets an email notification.
                      Don't worry, Christine is getting the email notifications too, so she is not missing out on anything.

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                      • #12
                        Well thanks, as a newcomer I have learned something new...hip hip hooray. I am in your debt. Doh is me....hahaha for being so dumb...

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                        • #13
                          So i went to the drs. and he really didn't know what to say about what it can be, just ordered an ultrasound on my kidney, bladder and urterer (spelling?). I go TOMORROW, I'm excited, 1 step closer, that is what I keep telling myself. I told my dr. I am going out of town actually out of state for a wedding for this weekend, we leave Thursday night and he ordered the testing STAT and will have my results by thursday so that will rule out kidney stones, etc...so we shall see what comes out of it. I am fortunate enough to have military insurance so as long as the place I go accepts my insurance (which they do), they pay for any kind of testing that I get, nothing is ever out of pocket. But thank you so much everyone for the support and advice, it really does feel good that I'm not going through this alone or not going crazy lol

                          Comment


                          • #14
                            Christine,

                            Let me know how the test goes. I did have an ultrasound done as well and all it did was give me a reading of:
                            * uterine anomalies
                            * uterine scars
                            * endometrial polyps
                            * fibroids
                            * cancer, especially in patients with abnormal uterine bleeding

                            Ultrasound waves are disrupted by air or gas; therefore ultrasound is not an ideal imaging technique for the bowel or organs obscured by the bowel. In most cases, barium exams, CT scanning, and MRI are the methods of choice in this setting.

                            Large patients are more difficult to image by ultrasound because tissue attenuates (weakens) the sound waves as they pass deeper into the body.

                            In short, it didn't give me a diagnosis of I.C. A cystoscopy with hydrodistention was the only thing that showed I had cracks in my bladder. I mean you have to weigh the pros and cons but if it doesn't show anything I would still have the other procedure done. Good luck and let me know how it all goes.

                            Comment


                            • #15
                              Christine's test

                              Oh I am so excited and can hardly wait to find out if the KUB showed up anything. It is just a first step but Lori was right, the C & H with the uro is the one sure way to find out if you truly have IC. Please, please go to a uro without delay. It is the best thing to do, or a gyn who also is up to date on IC. We have no uro-gyn specialist in our area but one gyn doctor who has recently begun using some tried and true methods in his practice for relief of IC pain and is having great success. I am anxious for your next post.

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