Announcement

Collapse
No announcement yet.

IC and Dilated Cardiomyopathy. Please help me live. You won't believe this.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • IC and Dilated Cardiomyopathy. Please help me live. You won't believe this.

    I need help to live. My sons are 5 and 7. I am 41. I have Dilated cardiomyopathy, highly allergic to BETA BLOCKERS, doc tried to put me on an ACE inhibitor b/c of this, (lisinopril) which I learn increases potassium (K). WHATdo I do? I'm dying. Not figuratively. Literally.

  • #2
    Potassium is getting a reputation in the IC community because of the potassium sensitivity test being painful for an IC patient. Try thinking of it this way --- if you have an open wound and you put salt on it, it's going to HURT! But --- if instead you put the salt on food and ingest it, it isn't going to hurt that wound. Potassium ingested isn't the same as putting it directly into the bladder.

    I had a potassium deficiency and had to take a prescription supplement for several years and it didn't cause a problem with my bladder at all. I have been able to get enough in my diet so I don't need the supplement any more, but I do have levels checked occasionally to be sure.

    My suggestion is to work with your doctor to find the best medication for your specific problem.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Donna is right. Also when a drug increases potassium it is just going to help your body hold onto potassium that you are already ingesting or keep you from losing potassium you have. Some high blood pressure meds are potassium sparing to keep people from losing too much.
      Take care of what you need to with your Dr. I pray everything works out well for you.
      Sandra
      Link to the patient information, everything from What is IC? to Disability
      http://www.ic-network.com/patientlinks.html

      American Urological Association Clinical Guideline
      Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
      http://www.auanet.org/content/guidel...ent_ic-bps.pdf

      Comment

      Working...
      X