Announcement

Collapse
No announcement yet.

My story

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • My story

    It statrted in September when I thought I had back to back UTIs. After antibiotics and clean cultures, I had no idea what I was in for. So, went for the full examination, and tests came back negative for everything. Then had to wait 2 weeks for a urology appointment, and then 1 month for a cystocopy. The urologist started me on pain meds and oxybuton. Then he started the bladder installations which were painful, and almost every day after the installation, I would have to call in sick to work. For work, I have to be on my feet all day which aggravates the pain, and I can't take pain pills at work, because I have to drive from place to place. Finished the installations and now I am on Elmiron. Now I have been on pain killers for almost 5 months, still in pain everyday. I only drink water now and stay away from acidic foods, which has helped a little. My doctor is not very knowledgeable on IC. Help! Is there anything else that I could be doing?

  • #2
    Elavil is an antidepressant that is used to treat IC pain. It has helped me quite a bit. Atarax is an antihistamine that helps some people. I'm on Elmiron and it took almost 1 year to work. You could call your Uro and ask about them.

    Suzanne

    Comment


    • #3
      Have you tried lyrica?

      I'm getting a lot of help from Lyrica. Actually it's one of the only things (aside from pain killers) that will take away the shooting pains and pressure that I get in my bladder and rectum. It also helps me with the frequency. The down side for me is that it tends to cause weight gain in almost everyone. I tried to go off of it because of that but my pain came back so strongly that I decided to just work on really maintaining a strict diet. Nancy

      Comment


      • #4
        The IC diet helps most of us. The link to the latest food list is in my signature below.

        Elmiron can take six months or longer to become effective --- I hope it works for you soon.

        Sending warm healing thoughts,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        Working...
        X