Hi! My name is Gina. I'm 20 and was diagnosed with IC in 08 but have been suffering since 14. Let me just say I have had a LONG journey to finally arrive at this diagnosis. I also have cylic vulvodynia, fibromyalgia, IBS, and fructose intolerance. I have always had women problems which include pelvic pain, pain with sex, heavy periods and irregular periods. When I was 14 I went to get a physical for swimming and found out I had a UTI. After this first initial UTI I could not get rid of them. Finally I found out most of the cultures were negative but I still took my antibiotics. This went on for 2 years. I've seen 20+ urologist and NONE of them diagnosed me with IC. I got my diagnosis from a gyno. Treatments I've done include: elmiron, no effect, elavil, no help, neurotin 3600 mg a day, NO HELP, hydroxine, no help. DMSO instilations, cystoscopy w/hydrodistension, PT with biofeedback (this helps a bit), pudendal nerve blocks x3, no help, and trigger point injections. Along with these meds for my IC i've taken cymbalta for my fibromyalgia and flexerol, creams for the vulva with NO HELP! I am at my wit ends right now. I'm in school full time to be a nurse practicioner in uro-gyn so I can help people like me.
I have lots of questions maybe some of you can help with. When you have some of the related conditions to IC like fibromyalgia, and cylic vulvodynia how do you know whether its your IC or those things acting up? its so hard to distinguish!!!
I found a new uro @ the university of michigan and she is WONDERFUL. I've only seen her 2 times so far. I also see a gyn is the vulvar clinic there.
I am sooo thankful I found this forum. I was beginning to get suicidal because I feel crazy sometimes. Its a lot to handle. I also work full time and it is hard when people see me and I look fine but on the inside I'm not.
I am going to give my meds another try and start taking them faithfully.
As of right now I'm on:
Elavil 75mg at bedtime
Hydroxine 100 mg at bedtime
Tramadol as needed
Percocet as needed
Neurotin 3600 mg a day
Cystoprotek
My symptoms are: severe pelvic pain, pain with intercourse, frequency, urgency, nocturia 5-7 times a night, IC belly (looks like im prego lol)
How long does it take before the meds will have there theraputic effect? 3 months? Also for some of the older members who were diagnosed around my age, will my IC get better?
I have lots of questions maybe some of you can help with. When you have some of the related conditions to IC like fibromyalgia, and cylic vulvodynia how do you know whether its your IC or those things acting up? its so hard to distinguish!!!
I found a new uro @ the university of michigan and she is WONDERFUL. I've only seen her 2 times so far. I also see a gyn is the vulvar clinic there.
I am sooo thankful I found this forum. I was beginning to get suicidal because I feel crazy sometimes. Its a lot to handle. I also work full time and it is hard when people see me and I look fine but on the inside I'm not.
I am going to give my meds another try and start taking them faithfully.
As of right now I'm on:
Elavil 75mg at bedtime
Hydroxine 100 mg at bedtime
Tramadol as needed
Percocet as needed
Neurotin 3600 mg a day
Cystoprotek
My symptoms are: severe pelvic pain, pain with intercourse, frequency, urgency, nocturia 5-7 times a night, IC belly (looks like im prego lol)
How long does it take before the meds will have there theraputic effect? 3 months? Also for some of the older members who were diagnosed around my age, will my IC get better?
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