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  • Painful sex!

    Hello everyone!

    I was diagnosed with Chronic IC 10 years ago at the age of 20 and sex has never been painful during intercorse apart from the last 6 weeks! It has always been afterwards the burning came! and now its during sex and its making my life a misery! I only see my BF on the weekends and want to make love but when we try after a while it just feels like I am on fire down there! so we stop and take things really slow so he is barely moving at all (sorry for the graffic image!!!) Its always better when I am on top but any other position hurts! and my bits afterwards I swear if I looked down there would be flames!!! If anyone has any tips I would really appreciate it! and does anyone else get pain like this!!!????? xxxxxxx

  • #2
    Originally posted by KatieDior1 View Post
    Hello everyone!

    I was diagnosed with Chronic IC 10 years ago at the age of 20 and sex has never been painful during intercorse apart from the last 6 weeks! It has always been afterwards the burning came! and now its during sex and its making my life a misery! I only see my BF on the weekends and want to make love but when we try after a while it just feels like I am on fire down there! so we stop and take things really slow so he is barely moving at all (sorry for the graffic image!!!) Its always better when I am on top but any other position hurts! and my bits afterwards I swear if I looked down there would be flames!!! If anyone has any tips I would really appreciate it! and does anyone else get pain like this!!!????? xxxxxxx
    I get awful pains as well when I have sex with my husband. My urologist said more foreplay. We tried that and it did not help. I wish I could give a helpful answer. Maybe someone will respond with a helpful answer. I would like to know how to make the pain go away during intercourse.

    Comment


    • #3
      I would like to know any tips about this as well. I MISS being intimate with my husband. THAT is part of who we were/are/were, I don't even know anymore. I just know that the very THOUGHT of it HURTS and I LOVE my husband and I know he never wants to hurt me. But I feel as though IC has put a brick wall between us.
      Tonight, both my kids are gone from the house. "Normally" this would be a time for US!!! I just feel like we've both been ripped off. And it makes me SO angry. I want that part of my life back!!! I have told him and I don't know if this would work, but almost all of my pain comes from my bladder which is waaaaay too too close for sex. But I'm going to ask my Uro if he would teach me to do instillations at home. Then if I can instill something like Marcaine or Lidocaine and numb my bladder, maybe that would give me enough relief to be able to resume SOME sort of sex with my husband. I don't know if anyone has tried this, but if you have, please let me know. It's the only little bit of hope I have left.

      I'm so sorry for everyone who has to go thru this. IC has taken SO much from me/us. I just want a little bit back.
      Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
      Lexapro-20 mg
      Aciphex
      Ambien-as needed
      Percocet-7.5 up to 3 per day as needed
      Valium-10 mg x2 per day
      Phenergan-1 at night
      Prelief w/everything
      Now recovering from acute pancreatitis

      Currents treatments that help somewhat:
      Heating pad
      Hot baths
      Ice
      Being VERY still while lying down with legs elevated

      Comment


      • #4
        My doctor prescribed a lubricant call Sylk (pronounced silk), she said it was a lot better than KY

        You could try it, you never know

        This is also what I am taking and it is working:
        Amitriptyline - 50mg morning, 50mg Night
        Zapain (pain killers) 4-6 pills a day - each pill contains: Codeine Phosphate 30mg and Paracetamol 500mg
        Atarax (anti histamine) 25mg - 3-4 pills a day
        Naprosyn (anti inflammatory) 500mg- 1 morning, 1 at night

        xxx
        This is what I am taking and they work:
        Ciprofloxacin 500mg (1 after jiggy)
        Tramadol 50mg (1 or 2 pills) up to 4 times a day - Painkillers THAT ARE AMAZING

        *Love & Hugs from the doll in the UK

        Comment


        • #5
          Originally posted by QueenieLady View Post
          My doctor prescribed a lubricant call Sylk (pronounced silk), she said it was a lot better than KY

          You could try it, you never know

          This is also what I am taking and it is working:
          Amitriptyline - 50mg morning, 50mg Night
          Zapain (pain killers) 4-6 pills a day - each pill contains: Codeine Phosphate 30mg and Paracetamol 500mg
          Atarax (anti histamine) 25mg - 3-4 pills a day
          Naprosyn (anti inflammatory) 500mg- 1 morning, 1 at night

          xxx
          I just thought I should pass this on. I looked up Sylk lubricant online and it contains grapefruit extract (as the 3rd ingredient) and citric acid. I myself will not be trying this but I looked it up because I'm deperate for help in this area of my life. Im not sure, for myself, that this would help. But good luck to you if you do try it.
          Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
          Lexapro-20 mg
          Aciphex
          Ambien-as needed
          Percocet-7.5 up to 3 per day as needed
          Valium-10 mg x2 per day
          Phenergan-1 at night
          Prelief w/everything
          Now recovering from acute pancreatitis

          Currents treatments that help somewhat:
          Heating pad
          Hot baths
          Ice
          Being VERY still while lying down with legs elevated

          Comment


          • #6
            Aloe vera gel is supposed to be super gentle and healing. Desert Harvest makes a gel that can be used for intimacy or alone as it has healing properties. Also I think using a lidocaine gel externally before and after sex would help as it is in an anesthetic.
            Cindi


            Gelnique for frequency/urgency - works great
            Macrobid after sex
            Prilosec, continuous birth control pills
            synthroid .088mg, mucinex-d, restasis

            Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

            Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

            IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
            AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
            AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
            Great treatment flowchart on page 19 of the pdf

            Comment


            • #7
              I'm sorry you're experiencing painful sex. I started having IC symptoms in Oct. and it got horrible and then tapered to discomfort. I'm on elavil and klonopin but have just started to get pelvic physical therapy with Isa Herrera. I believe it really makes a difference. Even if you think you just have IC, I believe it affects many more things that just the bladder and this is more than just a strictly bladder disease. Try physical therapy and hot showers before/after. Good luck.

              Rachael

              Comment


              • #8
                I have the exact same problem! My dr says its my vulvodynia acting up. Right after sex I always pee, and then wash down there with a warm wash cloth. If its raw I use aquafora. (I think thats how its spelled) It helps with it be raw and hurting. Try using a cold pack and dont wear underwear to sleep. Hope this helps!
                Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

                Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

                Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

                Comment


                • #9
                  http://www.ic-network.com/selfhelp/sex.html

                  This is the link for tips on intimacy on this site. Also a highly recommended lubricant is astroglide. Good luck, I know this is the hardest part of having IC.
                  Link to the patient information, everything from What is IC? to Disability
                  http://www.ic-network.com/patientlinks.html

                  American Urological Association Clinical Guideline
                  Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
                  http://www.auanet.org/content/guidel...ent_ic-bps.pdf

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