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Am in pain and going thru Hell! :(

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  • Am in pain and going thru Hell! :(

    I'll do my best to share the short version mainly because it's extremely painful to talk about and I'm feeling very emotionally distressed. I was the victim of a brutal violent hate assault by high school bullies when I was 13 and I was punched hard several times in my stomach and my jaw. It's a miracle I survived the assault.

    Fast forward 20 years, I'm grateful I did, though, the chronic pain I suffer day and night is a nightmare and I'm grateful for my dear husband and kittycat fur kids who help keep me sane, laughing, and smiling! I was never checked or examined by a doctor and I didn't receive counseling therapy for all the anguish distress I suffered.

    Today, I suffer from a debilitating painful bladder condition, and while I haven't been officially diagnosed, my symptoms match that of a uti and IC. Since childhood, pain is the signal that I have to pee and when I pee, I feel relief and no more pain until the next time I have to pee, which is frequent. I also recently discovered that my pee smells and sometimes, it's cloudy, which I read are symptoms of a uti.

    Thankfully, I'm a healthy woman and I can walk and I don't have pain 24/7, but this is wrecking my life! I'm reading and reviewing the elimination diet list and the groceries I need and so far so good. I consume zero caffeine and zero stimulants and I don't drink any alcohol. I applied for disability 5+ years ago for asthma, IC, and depression, but I was declined, after lots of time, gas money wasted, and frazzled nerves. I was very upset and devastated and I felt like they had wasted my time. They wouldn't even refer me to a urologist to get checked and examined. I wish I had contested, but I'm not going to live in the past. My dear husband and I talked about it today and we're wondering if I had focused on the IC if I still would have been declined or perhaps not. We both agreed that we wouldn't put ourselves thru that stressful aggravation again, but we're wondering what others think?

    Is it virtually impossible to get disability, regardless of your condition, unless you're pregnant, have children, or are missing limbs? I'm not saying I will consider trying again, but I would appreciate some feedback. Thank you for your support and thank you for listening.

  • #2
    Almost everyone is denied at their first request for disability. We encourage people to appeal --- since it's been several years, I encourage you to file again. You will need to have your physician's recommendation and need to be prepared to be denied at first application, but when you are finally approved, you get back pay.

    Sending encouragement your way,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Donna is right on. As I read your post I am wondering if you go to your Doctor when your urine is cloudy do you get it checked for a UTI? We learned the hard way that a UTI can become dormant for awhile yet it stays in the body and will come back with a vengeance if not removed totally. In my opinion you need a doctor for a number of reasons. You won't get disability unless you have one advocating for you. You should get a real diagnoses. From what you post, I am concerned for your over-all health. I hope if you don't have a PCP that you will find one soon. I am so sorry you are going through all this. Hugs, Ziggy

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      • #4
        hello,i can relate to your post. this condition has literally turned my life inside out. i am in so much pain i can barely walk. i dont want to take the easy way out and try to get a disability check,i want to live a normal life but at this point its looking like i might have to or find some way to work from home.you will always get denied the first time.REAPPLY but have ALOT of evidence!
        Newly IC diagnosed as of February 2011.

        Medications I'm on that seem to work:
        Zoloft- one once a day
        Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

        Failed Meds:
        Elmiron-after 4 months,digestive side effects got to be too much
        tramadol-allergic
        DMSO treatments(5-6)
        probiotics

        THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
        AROMATHERAPY-candles,incense
        Village Naturals Aches and Pains Peppermint Bath Salts
        Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

        ACUPUNCTURE/HERBS
        Significant pain relief so far.

        MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

        Add me on facebook Angela Hasic

        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        Lord, make me an instrument of your peace;
        where there is hatred, let me sow love;
        when there is injury, pardon;
        where there is doubt, faith;
        where there is despair, hope;
        where there is darkness, light;
        and where there is sadness, joy.
        Grant that I may not so much seek
        to be consoled as to console;
        to be understood, as to understand,
        to be loved as to love;
        for it is in giving that we receive,
        it is in pardoning that we are pardoned,
        and it is in dying [to ourselves] that we are born to eternal life.

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