Announcement

Collapse
No announcement yet.

Well, it happened. (X-post)

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Well, it happened. (X-post)

    I got my disability denial letter today. Now I know that most people are denied on their first try and not to take it personally but I still feel upset about it. I have already talked to my attorney who has been ready to file my appeal as soon as the denial came through but I had just hoped that they would see this crappy disease and all of it's accompanying diseases for the horror that they are and validate me for once. They took each of my diagnoses and excluded each on individually. Well maybe that would work (although I don't think I could work if I only had IC) but when you put all of the diseases together...THAT is why I can no longer work. The letter said I should be able to do the same work I did before - well then why was I FIRED for too much time away from my desk and too many sick days when I tried to go back to the same kind of work?

    Anyway, just venting really but it's hard not to get discouraged. Afterall, it's my money that I paid in all those years that I was a hard working citizen and I need it now more than I will at 62 so why is it so hard?

    I filed based on my IC, Fibro, severe untreatable central sleep apnea, IBS, chronic fatigue syndrome, and menier's disease. Dump to think I could be a productive person at home let alone work for someone else!
    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
    _____________________________

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    It's a form letter, try not to let it get to you too much. I know it is hard, mine had me all upset. Don't give up, if you know it is right, you will win your case in the end. Hang in there.
    Link to the patient information, everything from What is IC? to Disability
    http://www.ic-network.com/patientlinks.html

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

    Comment


    • #3
      That is typical, everyone gets those stupid first denials. You have to remember, these are people sitting in front of a computer that tells them how to deny each problem. Your lawyer was right on, he knew that was coming. Takes time, unfortunately.

      Know you need the money, and you have to understand these dis lawyers work hard for you, they are not going to see any $$ until they get your case through. The system changed about a year ago and "they" are delaying claims more hoping people would give up. Don't give up. We were scheduled for a hearing with the judge and when he saw Bob's case on the papers he sent a pretty strong kinda reprimand letter which indicated Bob is 100% disabled and had been for 2 years, and that letter was directed at the denial folks. We never had to appear. Hope you get a judge who is as compassionate as ours. And do continue to emphasize your other conditions as well, and pour your heart out and be brutally honest on your papers. Good luck to you. Jill, wife of Bob

      Comment


      • #4
        Jill,
        Where did you get the information that the system changed and they are purposely delaying claims? I never had to go to a hearing either because Judges from other states are helping my state and other's with backlogs, when she read my case she approved me without a hearing as well. I have never heard of a change like that and my attorney was very honest with me. She also told me that judges don't want to hurt us and rule against us. I just have a hard time accepting that they are "out to get us". I think we would have heard all about that on some news story if that were the case.
        Sandra
        Link to the patient information, everything from What is IC? to Disability
        http://www.ic-network.com/patientlinks.html

        American Urological Association Clinical Guideline
        Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
        http://www.auanet.org/content/guidel...ent_ic-bps.pdf

        Comment

        Working...
        X