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I'm in enormous pain ; not a play for sympahty

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  • #1

    I'm in enormous pain ; not a play for sympahty

    This is not above just you. I have had ups and downs with this demon; thanks to Amarthe's help, I have been able to reach some members; but there has been no relply; I have reached the limits of this condition. There has been no reply. I can only say thanks, but no thanks. I am always reminded, though, of the Bible passage; that if you have no compassion, you will receive none.

    This scares me. Not only of doctors who ignore my pleas, but but of those who just dwelll on their sphere of misery and ignore others. Please help others.
    This is not just about you. It is about others. Please keep this in your prayers
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  • #2
    I am so sorry that you havent gotten any responses yet. But, please dont give up. The members, (that I have told you to PM about Pain Drs near you), may not have been online since you sent them a PM. I am absolutely certain that if they had been they would have PMed you back to answer your questions. I dont think anyone thinks you are just looking for sympathy, after all, even those of us who have pain meds now can still remember quite vividly what it was like before we got them. (Not to mention the fact that they still arent a cure-all, so we still have our bad days too, even with pain meds.)

    Since you are willing to drive to get to a pain Dr., that opens up alot of possibilites for you. However, I did do a search online for you in Little Rock. I just put "Little Rock Arkansas Pain Drs." into google and it came back with alot of names. (Approx 12 in your town as well as about 60 pain Drs within a few hours driiving distance.) BTW, that is how I found my own pain Dr...by searching online. Snce there are none that treat chronic pain in my town, I just did a search for the big cities nearest to me and then I started calling the list of Drs the search engine yeilded. I asked each one if they treated chronic pain patients. Then, when I found one that did, I asked about IC patients, (they had none). But, I went ahead and had my Dr. refer me to that one, and then decided to just explain to the Pain Dr in person about IC and my individual circumstances necessitating pain control to plead my case to be taken on as a patient. Sure enough, this worked! (And now they treat 2 other IC patients besides me!)

    So, you might give that a try. You might also start a new thread under your regieon asking for names of Pain Clinics by specific cities. (Some may not mention theirs b/c they may just assume you wouldnt want to drive that far. But, if you list their large city by name, then they would probobly gladly volunteer the info.

    But please, try not to let the IC get you down and get you upset. Remember, we are all in this together!

    I truly hope you find a Pain Dr. very soon.

    Sending hugs,
    Amaranthe
    I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

    D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

    Meds: Estrogel (due to total Hyster)
    The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)

    (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


    John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

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    • #3
      One more thing I just thought of......is it possible that you did not actually PM those people, but just think that you did? I say that b/c I rarely ever click on my own name to do anything on here, so I hardly ever see my visitor board. But, the other day I coincidentally clicked on my name b/c I wanted to edit my signature. Anyway, it was just a coincidence that I saw that you left me a message there. What you wrote to me is something that someone would usully PM instead of post on a message board. That's why I am wondering if you posted messages to them instead of PMing them. If so, then that's another reason why you probobly havent heard from any of them. Just a thought. (To PM, click on the person's name and then click on the option to "send private message".) But, if you did PM them, then they probobly just havent been online.
      Just a thought!
      I am not a medical professional. I do not give medical advice. In all cases, I urge you to talk to your Dr. about your treatment options.

      D/Xed 2003 with IC. Also have the co-existing condtions of VV, Vulvadynia, Lupus, Fibro, GERD, CPP, Endo, & Adhesions, and Depression

      Meds: Estrogel (due to total Hyster)
      The meds r/xed by my Pain Dr. from the Pain Clinic are as follows: Morphine ER and IR, Baclofen, and Lyrica and Seroquel (used off-label as a sleeping pill, but it also helps with depression)

      (I listed my meds in case someone reading this has been told like so many ICers that Drs dont r/x pain meds for IC.) I want you to know that there ARE tons of us who are also dealing w/this disease and the pain and many of us ARE on pain meds.)


      John 3:16 For God so loved the world that he gave his only begotten son, that whoever believes in him shall not perish but have everlasting life.

      Comment

      • #4
        Another suggestion may be to go to ER tell them you cannot handle this pain everyday and see if they can set up a pain management doctor to come see you. This happened with me while in MI. After over a year of barely getting out of bed an ER dr. listened. I am now in PA or I would offer you suggestions. Are you taking anything for pain now?
        Teresa

        We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

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        • #5
          Your own doctor should be able to refer you to a pain management specialist in your area. I hope you are able to find help soon.

          Warm hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            HELLO SERVERTT
            I wanted to know how you are today?
            I wished I lived closer to you but you are a long long way away! now that's proper english aye?
            If I lived just a car ride away I would give you a big hug cause I think that's what you need along side some efficient pain control...just a question does your doctor know how much pain you have and have you had a urine dip to check you have no infection?
            Infections can cause unbelievable pain ...why not take a sample along to docs tommorrow...hope you feel better soon sweetheart I'll chat with the help angels tonight and hope something works for you...pm me if you want I check in most days but not weds as I have another cystoscopy ...my third in as many years..speak soon.,do something really nice for yourself what ever makes your spirits lift. Thinking of you as I know a lot of us are....I'll take some of your pain from you for a short while..I can afford to take a little bit at the moment.lots of love from Madi. take care. xxx

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