Although according to my urologist I do not have IC but rather trigonitis and a narrowed uerethra which he treated with a cystoscopy and a nightmare uerethal dilation, I believe I have IC.
It started last fall with what I thought were UTI's. I kept getting AB's for them although all cultures were always clear but they were very slow to go away. Azo helped and I stayed pretty sane. Then in January I started a downward spiral that finally landed me in the ER. The constant tearing urge to go and stomach tenderness drove me into panic attacks that came in waves. They gave me a shot of Ativan which didn't help. Later they gave me a shot of morphene even though I didn't think pain was my biggest complaint. 30 seconds later I was sobbing in relief. I stayed on xanax and oxycoden until I saw the UR. Now although my urge and frequency has diminished, it feels like something is in my rectum and is excruciating. I should point out that I had to have my colon removed 17 yrs ago and I no longer even have a rectum. My urologist doesn't have any idea why that would be and dismissed it as having anything to with my other symptoms.
The anxiety attacks and pain are killing me. The meds are the only thing that help but I'm so fearful of running out that I try to go as long as I can without, until I snap. I don't seem to have the agonizing pain that some of you describe in your pelvic areas, just tenderness and tightness. How do you cope? I can't even leave the house. Do I need a different doctor? Does anyone cry all the time?
It started last fall with what I thought were UTI's. I kept getting AB's for them although all cultures were always clear but they were very slow to go away. Azo helped and I stayed pretty sane. Then in January I started a downward spiral that finally landed me in the ER. The constant tearing urge to go and stomach tenderness drove me into panic attacks that came in waves. They gave me a shot of Ativan which didn't help. Later they gave me a shot of morphene even though I didn't think pain was my biggest complaint. 30 seconds later I was sobbing in relief. I stayed on xanax and oxycoden until I saw the UR. Now although my urge and frequency has diminished, it feels like something is in my rectum and is excruciating. I should point out that I had to have my colon removed 17 yrs ago and I no longer even have a rectum. My urologist doesn't have any idea why that would be and dismissed it as having anything to with my other symptoms.
The anxiety attacks and pain are killing me. The meds are the only thing that help but I'm so fearful of running out that I try to go as long as I can without, until I snap. I don't seem to have the agonizing pain that some of you describe in your pelvic areas, just tenderness and tightness. How do you cope? I can't even leave the house. Do I need a different doctor? Does anyone cry all the time?
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