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So where do I start. Almost 3 years ago I had my daughter. I had pre-eclampsia, and the blood pressure issues continued for 6 months after giving birth. I had never been sick with anything other than a cold. During my pregnancy my OB kept finding blood in my urine. I ended up passing a kidney stone after they treated me with antibiotics for a UTI. Every urine sample after that still had blood. This went on with no explanation till about 2 months after I had Allie.
Finally my Primary Care Doctor referred me to a urologist. This was after almost 5 months of visible blood in my urine. It looked like tiny blood clots. My urologist immediately scheduled a cystoscopy. He then diagnosed me with bladder inflamation. He didn't call it IC, but he said it was something I'd have to deal with and it doesn't go away. I really had minor symptoms for a long time. I had no clue what IC was or that I had a condition that could be so irritating and painful. Up until this past October I basically was symptom free, other than my bladder being sensitive if pressure was applied.
In Oct. I kept getting eye infections. My eye doctor thoroughly examined my eyes several times, but still has no explanation. They always swell up, and have a ton of discharge all the time. It's really pretty gross, but not noticible unless you really look. Of course I notice it cause it's irritating. I am still following up with the eye doc trying to figure it out.
After that started I noticed blood in my urine. I immediately thought kidneys stones. I went to the doctor and was sent home with migraine medicine, pyridium, and ciproflaxin for a UTI. I had a bad headache while I was there that is why he gave me migraine meds. The blood was still there after finishing the cipro. So I went back and he gave me macrobid. Long story short this is still an issue. I've been on several antibiotics. Cipro, macrobid, keflexm, doxyciclin, even augmentin. Please excuse my spelling. I've taken 2 rounds of cipro and macrobid. Still no relief.
About 2 months into this I saw a different doctor. He did a sonogram and diagnosed me with IC, and said I didn't empty my bladder. He prescribed me one of those antibiotics. I can't even keep up with it anymore, and told me to keep a journal of my diet. Neither of these doctors would give me a referall to a urologist. They felt that they could treat me. I finally saw a nurse practioner, and she knew about IC and gave me a referall to my urologist. I have to have one with my insurance.
My appointment is next Wed, I don't think I've ever been more anxious about a Doctors appt. This has been a nightmare. I've had other strange symptoms too. I've had joint inflammation, and pain. My ankles get so swollen I look 8 month pregnant. I'm always so drained, just absolutely no energy. I have horrible lower back pain, and I live in the bathroom. I keep getting strange rashes on my arms and hand when I'm exposed to sun, I have always tanned easily so this is weird to me. My hair started to thin in the beginning of all this. My hairline is so far back. It's just so many strange things. I've never had any health problems, but the past 5 months I feel like I'm just falling apart.
Well that is my journey so far. I'm going to try this diet, and see what the doc has to say. I'll just go from there. If I just take 1 thing from this it is that I will never take my health for granted. It could always be worst. This has only made me stronger, well that is what I try to tell myself. I have handled things pretty well, but I break down sometime. Thanks for reading, and I look forward to having people to share my struggles with who understand.
Finally my Primary Care Doctor referred me to a urologist. This was after almost 5 months of visible blood in my urine. It looked like tiny blood clots. My urologist immediately scheduled a cystoscopy. He then diagnosed me with bladder inflamation. He didn't call it IC, but he said it was something I'd have to deal with and it doesn't go away. I really had minor symptoms for a long time. I had no clue what IC was or that I had a condition that could be so irritating and painful. Up until this past October I basically was symptom free, other than my bladder being sensitive if pressure was applied.
In Oct. I kept getting eye infections. My eye doctor thoroughly examined my eyes several times, but still has no explanation. They always swell up, and have a ton of discharge all the time. It's really pretty gross, but not noticible unless you really look. Of course I notice it cause it's irritating. I am still following up with the eye doc trying to figure it out.
After that started I noticed blood in my urine. I immediately thought kidneys stones. I went to the doctor and was sent home with migraine medicine, pyridium, and ciproflaxin for a UTI. I had a bad headache while I was there that is why he gave me migraine meds. The blood was still there after finishing the cipro. So I went back and he gave me macrobid. Long story short this is still an issue. I've been on several antibiotics. Cipro, macrobid, keflexm, doxyciclin, even augmentin. Please excuse my spelling. I've taken 2 rounds of cipro and macrobid. Still no relief.
About 2 months into this I saw a different doctor. He did a sonogram and diagnosed me with IC, and said I didn't empty my bladder. He prescribed me one of those antibiotics. I can't even keep up with it anymore, and told me to keep a journal of my diet. Neither of these doctors would give me a referall to a urologist. They felt that they could treat me. I finally saw a nurse practioner, and she knew about IC and gave me a referall to my urologist. I have to have one with my insurance.
My appointment is next Wed, I don't think I've ever been more anxious about a Doctors appt. This has been a nightmare. I've had other strange symptoms too. I've had joint inflammation, and pain. My ankles get so swollen I look 8 month pregnant. I'm always so drained, just absolutely no energy. I have horrible lower back pain, and I live in the bathroom. I keep getting strange rashes on my arms and hand when I'm exposed to sun, I have always tanned easily so this is weird to me. My hair started to thin in the beginning of all this. My hairline is so far back. It's just so many strange things. I've never had any health problems, but the past 5 months I feel like I'm just falling apart.
Well that is my journey so far. I'm going to try this diet, and see what the doc has to say. I'll just go from there. If I just take 1 thing from this it is that I will never take my health for granted. It could always be worst. This has only made me stronger, well that is what I try to tell myself. I have handled things pretty well, but I break down sometime. Thanks for reading, and I look forward to having people to share my struggles with who understand.
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