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  • can't urinate

    Has anyone else ever had this problem? I cannot pee for the life of me.. Just left the ER and they had to straight cath me.. Now I get to straight cath myself I'm making the 1 1/2 hour drive to my urologist so she can do some testing to see what is wrong. I've tried getting in a warm bath, running water, palpating my bladder and nothing helps. I only had 350 ml in my bladder at the ER and it felt like I was gunna pee myself.
    Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

    Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

    Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

  • #2
    can't pee

    Gina,
    I generally don't have trouble peeing, but have found that when I take Atarax, I do have retention. Narcotics sometimes cause that for me as well.
    Have you spoken to your doctor about your problem?
    Laurie

    Comment


    • #3
      I have the same problem. Some times I can urinate sometimes I cannot.The first time this happened to me I paid $1000 in ER, now I cath myself. Two weeks ago I coudn't find a restroom and I had to cath myself in my car. I know stress is worst for bladder but, how do you calm down if you have to do something like that? After that my whole body was shaking.

      Comment


      • #4
        I'm glad you'll be seeing your doctor. There are medications that will help relax your muscles to make it easier to urinate. The ones that come to mind are cardura, hytrin, and flomax --- sometimes given to men, but also effective for us.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

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        • #5
          I cant straight cath myself because my vulva is too swollen I went pee on my own 2 times today but i was straining and I had to force it out. My uro said she just wants me to straight cath myself when this happens! She also said there is no meds to help... I dont know what to do...
          Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

          Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

          Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

          Comment


          • #6
            Gina I am so sorry this is happening to you! Did she say why this is happening? Did she look at all your meds? Have you started a new one that might be causing retention? Maybe you could call and ask about some of the ones Donna had mentioned and see if she thinks they might help. I'm assuming they checked you for an infection while you were there?
            Hope you feel better soon!
            Cindi


            Gelnique for frequency/urgency - works great
            Macrobid after sex
            Prilosec, continuous birth control pills
            synthroid .088mg, mucinex-d, restasis

            Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

            Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

            IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
            AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
            AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
            Great treatment flowchart on page 19 of the pdf

            Comment


            • #7
              "A word of caution: If urinary retention is a predominant feature of your IC, monitor your reaction to your prescribed medicine to be sure that it does not make your urinary retention worse. Some antidepressants are more anticholinergic than others are." (ichelp.org)

              Maybe the problem is Elavil. When I tried taking it I had more retention.

              Comment


              • #8
                I honestly have no idea why. The dr on call told me that it is normal and if im not having any other symptoms other than not being able to go it is nothing to worry about. The hospital here in toledo wanted to admit me last night but I can't because I have to work and have class tonight so after class tonight I'm going back to be admitted until they can figure out what is going on. I think its something to do with my bladder muscle. I still feel like I have to go but I can't get it out.
                Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

                Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

                Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

                Comment


                • #9
                  please get admitted.your health is the most important thing...i suffer from urinary retention as well. i think it may have to do with some of my meds and they had to put a foley cath in me for a week. ive started to go on my own now maybe 1-2 times a day but i fear the day i wont be able to go and have to start straining again. i dont want to have to self cath myself at home. i hate catheters..
                  Newly IC diagnosed as of February 2011.

                  Medications I'm on that seem to work:
                  Zoloft- one once a day
                  Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                  Failed Meds:
                  Elmiron-after 4 months,digestive side effects got to be too much
                  tramadol-allergic
                  DMSO treatments(5-6)
                  probiotics

                  THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                  AROMATHERAPY-candles,incense
                  Village Naturals Aches and Pains Peppermint Bath Salts
                  Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                  ACUPUNCTURE/HERBS
                  Significant pain relief so far.

                  MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                  ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                  Add me on facebook Angela Hasic

                  ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                  Lord, make me an instrument of your peace;
                  where there is hatred, let me sow love;
                  when there is injury, pardon;
                  where there is doubt, faith;
                  where there is despair, hope;
                  where there is darkness, light;
                  and where there is sadness, joy.
                  Grant that I may not so much seek
                  to be consoled as to console;
                  to be understood, as to understand,
                  to be loved as to love;
                  for it is in giving that we receive,
                  it is in pardoning that we are pardoned,
                  and it is in dying [to ourselves] that we are born to eternal life.

                  Comment


                  • #10
                    I sure hope you find what is going on. Retention is scary --Ditropan x caused that with me.. I stopped it immediately..I am using Oxytol Patch now but does not seem to do much of anything..good or bad..
                    God brought me to it, He will bring me through it!!!

                    Diagnosed 2003
                    by cysto/hydro
                    Elmiron took almost a year- made me sick, caused diarrhea
                    Pyridium -Made me sick
                    Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
                    Tried DMSO instill- had 5 out of 6
                    Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
                    Cysto/hydro April 6th 2011-- on expansion only hold one cup
                    IBS/ IC
                    High blood pressure meds and Crestor
                    Metformin (prediabetic)
                    Sinequan (depression)

                    Comment


                    • #11
                      Thank you Donna, my dr prescibed me flomax to help. I didn't take my elavil last night and I can pee today!!! I'm feeling better and I'm going to get on a different med similar to elavil. I hate cathing myself..

                      Has anyone had this from Elavil? I've taken it on and off since I got diagnosed and this is the first time its happened
                      Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

                      Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

                      Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

                      Comment


                      • #12
                        This is my worst symptom.It started with me waking up about one hour after I had gone to bed, to pee. But when I get there, I can't, and it is very painful to try. Like a knife trying to poke out of me. I have learned to get up walk around, and try again.
                        I'm pretty sure my muscles are in spasm. I usually take a uristat, so that when I do pee, it will at least help mask the pain. After I pee, I am ok.
                        In the last 2 years, I have an added pain. I find that instead of peeing, I have to poo. This is also painfull, but after I poo, I feel a little less pressure. After I poo enough, I am able to pee. I am getting up and walking around a little after each poo, or attempted pee, to try and stay calm. I think this might be the beginning of IBS.
                        If I'm really lucky, I can get rid of the pain in 5 - 10 minutes. When it lasts over an hour, I get anxious. I have Valium to take, but haven't found it very useful, once I am so tight. I have had the episodes last up to 6 hours.
                        My last bad episode, was after a sigmoidoscopy, without sedation. After 4 hours of not peeing, I called my urologist's emergency phone #, and asked to have a script called in for some caths. I was sure I could figure out how to do it. I had cath'ed my mom, after she had gone home, from a surgery.
                        In the past I have thought of going to the ER to be cath'ed, but I live alone, and there is no way I could drive. My boyfriend was with me after my sigmoidoscopy, so he ran around town to get my caths.
                        Current Medications:
                        Trileptal - MS
                        Amantadine - MS fatigue
                        Trazadone - sleep
                        Elmiron -since March 2007
                        Gabapentin - pain
                        Citracal - osteopenia
                        Vitamin D - deficient
                        Valium vaginal - as needed
                        Prelief - as needed
                        Fish Oil
                        Metamucil

                        Comment


                        • #13
                          Well thats good news
                          I think most of the tri-cyclics list that as a possible side effect but there are other classes of anti's they could try. Also you could try lowering your dose. Have you been on that dose for long?
                          Your at a pretty high dose and you might have withdrawal symptoms going totally off it at once. I think they recommend you taper off of it (if possible).
                          Cindi


                          Gelnique for frequency/urgency - works great
                          Macrobid after sex
                          Prilosec, continuous birth control pills
                          synthroid .088mg, mucinex-d, restasis

                          Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                          Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                          IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                          AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                          AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                          Great treatment flowchart on page 19 of the pdf

                          Comment


                          • #14
                            melhil,
                            that isn't good and not something you should have to live with Have you spoken to your Dr about the problem. That doesn't sound like IBS to me. You should speak with your Dr about it, possibly one of your meds is causing this as well. I can't take any of the OAB drugs or I have the same problem.
                            Link to the patient information, everything from What is IC? to Disability
                            http://www.ic-network.com/patientlinks.html

                            American Urological Association Clinical Guideline
                            Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
                            http://www.auanet.org/content/guidel...ent_ic-bps.pdf

                            Comment


                            • #15
                              Originally posted by cmclien View Post
                              Well thats good news
                              I think most of the tri-cyclics list that as a possible side effect but there are other classes of anti's they could try. Also you could try lowering your dose. Have you been on that dose for long?
                              Your at a pretty high dose and you might have withdrawal symptoms going totally off it at once. I think they recommend you taper off of it (if possible).
                              My gyn in the vulvar clinic keeps upping my dose of elavil. I used to only take 25-50mg but it wasnt helping with my pain so they keep upping it. My uro said to stop completely. I dont think what was happening was retention. My bladder muscle wouldnt push it out, like i had no control over it. It didnt hurt, other than the fullness and pressure of the bladder. I was so uncomfortable I couldnt sit down. I have a post op apt with my uro on march 22, so I'm sure she will change up my meds (so hopefully they work). I'm so ****** I just bought a 3 month supply of elavil and the 25mg tabs to keep upping my dose on a titration scale. It could be the atarax im taking. Idk...I'm just glad I can pee again.
                              Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

                              Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

                              Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

                              Comment

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