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Hello Everyone I hope you are having a rest from pain day today.
Now thats a good idea..we should start a national pain free day (if only I can hear you say) So the heading caught your attention, and being human we are curious when told not to do something ...in fact ..being the little rebel I am I go the opposite direction when told what not to do ...it is only recently and my age that I've learned to do what I'm told.
I wanted to tell little bits about myself on spaced occasions..the reason is the sheer volume of medical history spanning three years ..Thank goodness it wasn't longer ..I would have either.......
1. bored everyone (even myself)
2. asked for a bigger New thread box
3. lost a lot of friends I haven't made yet.
I.C. ----a diagnosis I was not going to accept as it didn't fit the criteria boxes.
I saw pictures of my poorly angry bladder resembeling something like a demented blamonge!
No ones bladder should look that angry I thought and immediatly went into be good to the bladder mode..first thing on the agenda was T. L.C.
The extreme pain I suffer comes from top of the inside of the vagina.
after standing a short time I feel movement...in a few words it feels as if my organs are making a desperate BID to ESCAPE!! (very difficult for docs to understand)
It is not the nicest of feelings even if the pain isn't in the 7/8 pain scale.
On the trip down investigation avenue I learned I had Diverticular disease,
(bearing in mind the split of that word indicates something very obvious
Dis -at--ease.. which is how my body is feeling.
I have a swelling on the right side of body inside, I can feel the swell and sometimes wonder when will it stop ...don't want an eruption anywhere, but just as that thought comes the swell stops.( the swelling can't be seen!!)
I mention this to every specialist, none seem bothered.
NOW onto the bit don't try this at home....
Some years ago I lived on diet coke as my one and only favoured drink.....I gave up....gosh it was like coming off vallium..the withdrawal was horendous, shaking, no confidence, head aches etc....but I stuck with it as this, I was told, irritated the bladder (YEP..that makes sense)
Two weeks ago , having evening meal my other half said he fancied a cold coke and brought in two from the den...he unconsiously poured a glass for me...it was nectar!! then a sudden shock feeling came to me OMG am I going to pay a price for that. But instead it did the opposite, I had no pain any where, left it a few weeks tried again and same result...I am not chancing my luck any more...but I find it strange as it is one of the no nos. I don't suggest any one here tries it.
Anyway that's another bit about me...tommorrow 02 march I have my third cystoscopy under G. A,
A different urologist but he will not listen to other problems in that area just called on the case to investigate blood in urine.
A QUESTION is there someone diagnosed with I C who experiences a swelling on the right side under the right breast? AND could the bulge in the vagina be my BLADDER?
If so, why has nothing been seen I know I have asked that question before but never met with anyone with same symptoms only similier. I am confused
thanks for listening
love from Madi xxxx
Now thats a good idea..we should start a national pain free day (if only I can hear you say) So the heading caught your attention, and being human we are curious when told not to do something ...in fact ..being the little rebel I am I go the opposite direction when told what not to do ...it is only recently and my age that I've learned to do what I'm told.
I wanted to tell little bits about myself on spaced occasions..the reason is the sheer volume of medical history spanning three years ..Thank goodness it wasn't longer ..I would have either.......
1. bored everyone (even myself)
2. asked for a bigger New thread box
3. lost a lot of friends I haven't made yet.
I.C. ----a diagnosis I was not going to accept as it didn't fit the criteria boxes.
I saw pictures of my poorly angry bladder resembeling something like a demented blamonge!
No ones bladder should look that angry I thought and immediatly went into be good to the bladder mode..first thing on the agenda was T. L.C.
The extreme pain I suffer comes from top of the inside of the vagina.
after standing a short time I feel movement...in a few words it feels as if my organs are making a desperate BID to ESCAPE!! (very difficult for docs to understand)
It is not the nicest of feelings even if the pain isn't in the 7/8 pain scale.
On the trip down investigation avenue I learned I had Diverticular disease,
(bearing in mind the split of that word indicates something very obvious
Dis -at--ease.. which is how my body is feeling.
I have a swelling on the right side of body inside, I can feel the swell and sometimes wonder when will it stop ...don't want an eruption anywhere, but just as that thought comes the swell stops.( the swelling can't be seen!!)
I mention this to every specialist, none seem bothered.
NOW onto the bit don't try this at home....
Some years ago I lived on diet coke as my one and only favoured drink.....I gave up....gosh it was like coming off vallium..the withdrawal was horendous, shaking, no confidence, head aches etc....but I stuck with it as this, I was told, irritated the bladder (YEP..that makes sense)
Two weeks ago , having evening meal my other half said he fancied a cold coke and brought in two from the den...he unconsiously poured a glass for me...it was nectar!! then a sudden shock feeling came to me OMG am I going to pay a price for that. But instead it did the opposite, I had no pain any where, left it a few weeks tried again and same result...I am not chancing my luck any more...but I find it strange as it is one of the no nos. I don't suggest any one here tries it.
Anyway that's another bit about me...tommorrow 02 march I have my third cystoscopy under G. A,
A different urologist but he will not listen to other problems in that area just called on the case to investigate blood in urine.
A QUESTION is there someone diagnosed with I C who experiences a swelling on the right side under the right breast? AND could the bulge in the vagina be my BLADDER?
If so, why has nothing been seen I know I have asked that question before but never met with anyone with same symptoms only similier. I am confused
thanks for listening
love from Madi xxxx
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