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Even though I believe I've had IC since my kids were born, I was able to stay home with them and be there for every important moment. And I'm blessed that even though sometimes I feel like this disease has taken over my life, I'm STILL here for them for every important moment.And they are in college now, they still need me. And I'm blessed because I have a husband who has supported me in every important moment in MY life. No matter what happens with this stupid IC, I am blessed.
Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevated
to have a loving family who support me in all that i do/face in my life.
Newly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
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***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
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Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
This is a good thread. It's easy to forget the good things when you are in pain and don't see a way out of it. But focusing on our blessings will help us to maintain sanity and keep IC from taking over our lives. I am greatful because I have a loving husband, no money worries, three grown children who are doing well with their lives and 2 adorable grandchildren. I am very grateful that after 5 months of temporary housing (due to job transfer), my husband and I have found a sweet cottage home and are moving in on April 3rd.
I feel blessed to have caring physicians, a loving husband and family and friends --- and a circle of IC Network friends that reaches around the world.
Donna
Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
I am blessed because I have the luxury of staying home and doing nothing if I want/need to.
I am blessed to have a funny husband who can make me laugh and is always at my side at doctor appointments, thinking of all the things I might have forgotten to ask.
I am blessed to have my wonderful grandkids who make me forget my IC for a while when they call.
I am blessed,(this one is for today), to not live in Japan. It sounds pretty bad there post earthquake.
I am blessed to have found this forum, it's been my salvation-truely.
Laurie
I am blessed because I have a beautiful, loving family and lots and lots of support. I don't have to work, and I am able to stay home with my son. I am blessed because I have wonderful friends. I am blessed because I have a very caring doctor.
I am the mother to my beautiful son Parker Thomas. I have had IC for 10 years, and I also have migraines, endometriosis, pelvic adhesions, osteopenia, peptic ulcers, fibromyalgia, and PFD. I am currently prescribed Effexor XR 150 for depression/anxiety, 50mcg Fentanyl patch, Percocet for breakthrough pain, Klonipin for sleep and anxiety, and d-amphetamine salt xl for ADHD and excessive daytime sleepiness due to my pain meds, Pyridium, 10 mg of Valium (inserted vaginally to relax pelvic floor muscles, and I do bladder instillations once a day consisting of a mixture of 3cc Sodium Bicarbonate, 5CC Lidocane, & 22cc of Heparin. I also regularly use a prescribed TENS unit for pelvic pain, along with lots of rest in bed with my four, four-legged furry friends. (I once heard called "fur-therapy")
There is always something beautiful around you, sometimes you just have to look for it!
I am blessed because...I am able to get up out of bed everyday. Go to work (well...), have family, friends both here on the network and in life in general.
i am blessed because i have family who cares, friends who are near and dear to my heart, a job in nursing that i love, and a doctor who takes great care of me. i'm also thankful i found this site, a wonderful place to help others and to receive help.
Live until you die.....don't let IC control your life. Rock your world and as my heroine says, "fiddle dee dee, tomorrow is another day!"
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I am blessed because I can see, walk, talk, listen, sing; The list goe's on for me.
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