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Son's neurogenic IC bladder

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  • Son's neurogenic IC bladder

    Hello everyone,

    The reason why I am here, is not because of me, but because of my son.
    He was born with a spinal bifida and seems to be developing a neurogenic bladder. He is 8 years old, and had been asymptomatic up until last fall.

    He has always had a thickened bladder wall upon ultrasound, but now his bladder is spastic. We are considering spinal cord surgery revision and have been prescribed the medication Ditropan for the bladder. Yet, when I gave him Aloe Vera juice the other day, I noticed an improvement.

    This got me wondering, if we could get what may be his IC under control, if possibly his problems would resolve or at least improve. He is not suffering from pain, because he has never had a lot of feeling down there, and in the past would only know he had to go to the bathroom at the last minute. We are trying behavior modification, Kegal exercises, and I will continue the Aloe Vera, and possible introduce Chaparral. I just started giving him a little Colloidal Silver too, and I am interested in pursuing the use of biofeedback and TENS. Anything to avoid drugs!

    We already enjoy an organic whole foods diet, but I am concerned about what juices he should be drinking. We drink quite a bit of juice around here to keep the bowels moving, and I'm afraid all the bountiful juices my hubby just brought home from the store will not do for our son! So, I know apple, pear, and blueberry are okay, and orange, pomegranate, and cranberry are not recommended, but what about grape or straight acai? He loves his little multivitamins, but it looks like we may have to cut those out for a while. Is there anything else we should totally avoid? Whole wheat and raw cow's milk and cheese are a regular part of our diet. I hope we don't have to change that, it would make things a bit difficult!

    Any other suggestions are welcome!

    Thanks! Happy healing to you all!
    Last edited by ICNDonna; 03-09-2011, 03:47 AM. Reason: Removed unrelated comments.

  • #2
    Your son's bladder condition is not likely to be interstitial cystitis. I honestly think he might do better if you work with his physicians to help him.

    I do have a couple of comments: (1) Raw milk is not a very good alternative; there are some very serious diseases that can be caused by the milk from a cow who doesn't show any signs of disease. and (2) Colloidal silver is not safe at any dose --- if you do an internet search you will find that this substance has some serious, irreversible, side effects.

    I urge you to work with your physicians to help your son.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Maybe IC is not the only culprit effecting my son's condition, but I am very suspicious it is playing a role. Today, I mixed his aloe vera juice with grape juice, and he has taken a dramatic turn for the worse! What are the best juices for IC? I want to play it safe from now on!

      Comment


      • #4
        You'll find the latest food lists at the link in my signature below.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Spinal Bifida must be a challenge for your son and for you! It seems so very unfair when children are affected by health issues!

          I know apple, pear, and blueberry are okay, and orange, pomegranate, and cranberry are not recommended, but what about grape or straight acai?
          On the IC diet it lists blueberry & pear as "bladder friendly", low acid orange, grape and some apple as "try it" (which I take to mean some can tolerate / some can not), and cranberry, orange and acai are listed as "caution".

          Vicki
          "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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