Hello, everyone. My name is Lori and I was diagnosed with IC a few weeks ago. I've had symptoms for a very long time, but I always assumed they were associated with my lupus.
I recently went to a uro/gyno on my own after getting nowhere with my family doctor. I have a great uro/gynocologist, and I am really thankful for that. He is up on all the latest research and is fantastic, this is what he does and this is his specialty. He performed a bladder hydrodistension, and the pics are horrible. He said that mine is the worst case of IC that he has seen in years.
I am currently receiving daily irrigations of a mix of heparin, lidocaine, elmiron, and something else. Orally I am taking Vicodin, Elmiron, Atarax, Lyrica, Cymbalta, homeopathic cantharis and homeopathic belladonna, and pyridium. I am using b&o suppositories for the bladder spasms, and am also applying lidocaine jelly.
I also have a stage 2 cystocele and a stage 2 rectocele that can't be repaired until we get the IC under control.
I am in a ton of pain, I can't even wrap my brain around the level of almost constant pain.
What have you found that works? I am adjusting my diet and have ordered some books that I hope will provide some information. I am exhausted and fuzzy from the meds, and really so uncomfortable. What should my next step be? I can't wait to chat with you all and hear your stories...I feel pretty alone in this whole thing. My hubby and kids are kind of over it I think...they just want me to be better already. Me too...
Lori
I recently went to a uro/gyno on my own after getting nowhere with my family doctor. I have a great uro/gynocologist, and I am really thankful for that. He is up on all the latest research and is fantastic, this is what he does and this is his specialty. He performed a bladder hydrodistension, and the pics are horrible. He said that mine is the worst case of IC that he has seen in years.
I am currently receiving daily irrigations of a mix of heparin, lidocaine, elmiron, and something else. Orally I am taking Vicodin, Elmiron, Atarax, Lyrica, Cymbalta, homeopathic cantharis and homeopathic belladonna, and pyridium. I am using b&o suppositories for the bladder spasms, and am also applying lidocaine jelly.
I also have a stage 2 cystocele and a stage 2 rectocele that can't be repaired until we get the IC under control.
I am in a ton of pain, I can't even wrap my brain around the level of almost constant pain.
What have you found that works? I am adjusting my diet and have ordered some books that I hope will provide some information. I am exhausted and fuzzy from the meds, and really so uncomfortable. What should my next step be? I can't wait to chat with you all and hear your stories...I feel pretty alone in this whole thing. My hubby and kids are kind of over it I think...they just want me to be better already. Me too...
Lori
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