Hiya I'm new and in need of advise please

[smiffy]

Hi everyone, I am new hear so please bear with me if I am posting this in the wrong place!!

I really need some help with the symptoms I have and am hoping that you friendly fellows can point me in the right direction?

First I suppose I should give some background info, I have three children 15,13 and 11 - given birth naturally. I have always had, as I call it, an efficient system but did not think about it until a friend pointed out that it was 'not normal' to pee at least once every hour!

I have been diagnosed with fibromyalgia since 2004 and about two years ago (2009) I had constant pain in my flank and haematuria. A year later investigations were made - ultrasound, cytoscopy, Xray and a dye to access kidney function. It was determined that I had loin pain haematuria syndrome, as no stones or abnormalities were found. During this time I also had near enough constant urine infections and as such was put on three different types of antibiotics - rotating for three months.

with me so far?

So I after the antibiotics in 2010 I no longer have the symptoms of a UTI. However I still urinate between 15-20 times a day, at least once a night and some times leak before getting to the bathroom- this has been going on for as long as i can remember. I have no pain or burning when I urinate but sometimes, more often than not, have haematuria, additionally I have also noticed that when I wear dark coloured underware I bleach the gusset??

Last I was excruciating pain in the early hours on monday morning, and thought I may have passed a kidney stone. I was admitted to hospital where they gave me various tests - ultrasound, vaginal swabs, blood tests and urine test. Nothing wrong - no infection or inflammation and gave me painkillers for the pain suggesting that it was the fibro.

So nearly a week later I still have the pain, centrally located - assuming the bladder? and right hip pain as well as a 'balloon' feeling in my pelvic area. The Gp has suggested that the Fibro has alot to play in this but I am thinking that due to the frequent urination that I have an overactive bladder and/or maybe interstitial cystitis?

What do you guys think?

thanks for any help and advise anyone can offer xxxx

[ICNDonna]

If you haven't seen a urologist, I think it would be a good idea. In the meantime you might want to give the IC diet a try. You'll find the link to the latest food list in my signature below. It does sound like IC is a possibility.

Warm welcoming hugs,
Donna

[Linda May]

i agree with donna make sure though you get the best uro in your area. let us know how things work out for you.

[smiffy]

thanks for the reply.

I have had a look at the diet and to be honest with the exception of coffee I appear to avoid most of the caution foods in my diet most of the time. However, it is interesting to note that I have craved some of the 'soothing' foods over the last couple of weeks - go figure!!

I will go back to the Gp this week and see if she will re-refer me back to the urologist

Thanks again xx

[sailawaygrl]

Some things that I have been reading lately say that they are putting it together that many people with fibro also have bladder problems (interstitial cystitis). I have even read articles that say they should add the symptom of bladder problems to the fibro definition.

I hope you get in to see a uro soon and find answers.

[smiffy]

Hi and thanks again for the reply.

I had read that also which is one of the reasons I am thinking this way!

Today is really not a good day, felt better yesterday and then today wham! I feel like my bladder is so distended with a band around it and every once and a while someone comes along and twangs the band - giving me shooting pains along with the sharp ache I already have! Is this consistant with IC?

Going back to the Gp this week, hubby is very supportive, and I have been doing a chart so the doc can see what my intake and output is - good idea?

Thanks for all the support you guys are really great