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Hiya I'm new and in need of advise please

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  • Hiya I'm new and in need of advise please

    Hi everyone, I am new hear so please bear with me if I am posting this in the wrong place!!

    I really need some help with the symptoms I have and am hoping that you friendly fellows can point me in the right direction?

    First I suppose I should give some background info, I have three children 15,13 and 11 - given birth naturally. I have always had, as I call it, an efficient system but did not think about it until a friend pointed out that it was 'not normal' to pee at least once every hour!

    I have been diagnosed with fibromyalgia since 2004 and about two years ago (2009) I had constant pain in my flank and haematuria. A year later investigations were made - ultrasound, cytoscopy, Xray and a dye to access kidney function. It was determined that I had loin pain haematuria syndrome, as no stones or abnormalities were found. During this time I also had near enough constant urine infections and as such was put on three different types of antibiotics - rotating for three months.

    with me so far?

    So I after the antibiotics in 2010 I no longer have the symptoms of a UTI. However I still urinate between 15-20 times a day, at least once a night and some times leak before getting to the bathroom- this has been going on for as long as i can remember. I have no pain or burning when I urinate but sometimes, more often than not, have haematuria, additionally I have also noticed that when I wear dark coloured underware I bleach the gusset??

    Last I was excruciating pain in the early hours on monday morning, and thought I may have passed a kidney stone. I was admitted to hospital where they gave me various tests - ultrasound, vaginal swabs, blood tests and urine test. Nothing wrong - no infection or inflammation and gave me painkillers for the pain suggesting that it was the fibro.

    So nearly a week later I still have the pain, centrally located - assuming the bladder? and right hip pain as well as a 'balloon' feeling in my pelvic area. The Gp has suggested that the Fibro has alot to play in this but I am thinking that due to the frequent urination that I have an overactive bladder and/or maybe interstitial cystitis?

    What do you guys think?

    thanks for any help and advise anyone can offer xxxx

  • #2
    If you haven't seen a urologist, I think it would be a good idea. In the meantime you might want to give the IC diet a try. You'll find the link to the latest food list in my signature below. It does sound like IC is a possibility.

    Warm welcoming hugs,
    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3
      i agree with donna make sure though you get the best uro in your area. let us know how things work out for you.
      <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


      • #4
        thanks for the reply.

        I have had a look at the diet and to be honest with the exception of coffee I appear to avoid most of the caution foods in my diet most of the time. However, it is interesting to note that I have craved some of the 'soothing' foods over the last couple of weeks - go figure!!

        I will go back to the Gp this week and see if she will re-refer me back to the urologist

        Thanks again xx


        • #5
          Some things that I have been reading lately say that they are putting it together that many people with fibro also have bladder problems (interstitial cystitis). I have even read articles that say they should add the symptom of bladder problems to the fibro definition.

          I hope you get in to see a uro soon and find answers.
          Link to the patient information, everything from What is IC? to Disability

          American Urological Association Clinical Guideline
          Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom


          • #6
            Hi and thanks again for the reply.

            I had read that also which is one of the reasons I am thinking this way!

            Today is really not a good day, felt better yesterday and then today wham! I feel like my bladder is so distended with a band around it and every once and a while someone comes along and twangs the band - giving me shooting pains along with the sharp ache I already have! Is this consistant with IC?

            Going back to the Gp this week, hubby is very supportive, and I have been doing a chart so the doc can see what my intake and output is - good idea?

            Thanks for all the support you guys are really great