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the irony of IC

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  • #1

    the irony of IC

    I am starting to see improvement with elmiron, as far as pain is concerned. My biggest problem is frequency, and i think urgency is starting to improve. Hydrozyzine is also helping. I was very swollen.

    I always have a bad time in the morning. As soon as I urinate in the morning, it starts a cycle of frequency. My Dr. prescribed Sanctura XR (vesicare for 4 months, with no improvement) which I think might be helping, since I'm doing better in the afternoons. Because I have such a hard time in the am, i thought getting the med in my system before morning might help. Started to experiment, taking the Sanctura at night, instead of in the am.

    This morning I took the Sanctura at 3:00am. When i got up, after I voided, I had pressure, but was able to go 2 hours before voiding again! This was amazing, and was a sign that i am getting better.

    Went to the grocery store this afternoon and all of a sudden, went into a flare. (I'm ovulating) it's not as bad as those I've had in the past, but it seems that whenever i think I'm improving...i feel bad again... so ironic and unpredictable!!
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    • #2
      this desease has got the medical profession puzzled, every icer is different. this desease can happen at any age,sex,or race. pray for a cure soon.
      <center>
      <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
      </center>

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        • #3
          I just hope you continue to improve.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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            • #4
              sounds like you are on the right track! Elmiron can work miracles for some, and it sounds like you might be in that group. Unfortunately a lot of women of childbearing age go through this every month, you will get some response to this. But gee-wiz a flare at the store...what a pain that was! Just look forward to getting through your cycle and having a couple of good weeks again. You are obviously in good hands, continue to really stay connected with your doc and establish a good relationship. Wish you much luck, take care of yourself. Jill, wife of Bob

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