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Hello,
I am new to posting but have been reading posts since December. I am a nurse with alot of stress in my life. Work fulltime, have a child, helping with elderly grandparents, and a husband who is a full time student. Now that I look back, I really started having symptoms years ago. Blood in my urine, multiple UTI's...etc. After many rounds of antibiotics this past year, I developed horrible symptoms in December. I was going to the bathroom 30 times a day, with constant urge and frequency and retention. After an ER visit and 3 doctors later, I was diagnosed with IC. The Urologist mostly diagnosed by exclusion criteria. I was given 3 different alpha blockers for retention and all caused my nose to completely occlude. I started the diet. I was then given muscle relaxers and started PT, which PT has helped with the retention. After trying heparin instill (which releaved me for a couple of hours only) I was on fire the next day...I had worsening symptoms and unrelenting pain and ended up in the ER once again with a different Urologist. He did a Hydro/Cysto. My volumes were good and had no glomerulations until he reached higher capacities. They kept me overnight due to the pain and let me go home the next day. I was in EXCRUCIATING pain for almost 2 weeks. I would wake up sweating with the sensation of someone stabbing a knife into my bladder. I feel a little better now and started back to work. I am now taking elmiron and pain meds as well as elavil. I just wonder is there a light at the end of the tunnel? I always feel the urge to go, a pain in my bladder that keeps me uncomfortable. I have also done yoga, TENS, and relaxation techniques.
I am new to posting but have been reading posts since December. I am a nurse with alot of stress in my life. Work fulltime, have a child, helping with elderly grandparents, and a husband who is a full time student. Now that I look back, I really started having symptoms years ago. Blood in my urine, multiple UTI's...etc. After many rounds of antibiotics this past year, I developed horrible symptoms in December. I was going to the bathroom 30 times a day, with constant urge and frequency and retention. After an ER visit and 3 doctors later, I was diagnosed with IC. The Urologist mostly diagnosed by exclusion criteria. I was given 3 different alpha blockers for retention and all caused my nose to completely occlude. I started the diet. I was then given muscle relaxers and started PT, which PT has helped with the retention. After trying heparin instill (which releaved me for a couple of hours only) I was on fire the next day...I had worsening symptoms and unrelenting pain and ended up in the ER once again with a different Urologist. He did a Hydro/Cysto. My volumes were good and had no glomerulations until he reached higher capacities. They kept me overnight due to the pain and let me go home the next day. I was in EXCRUCIATING pain for almost 2 weeks. I would wake up sweating with the sensation of someone stabbing a knife into my bladder. I feel a little better now and started back to work. I am now taking elmiron and pain meds as well as elavil. I just wonder is there a light at the end of the tunnel? I always feel the urge to go, a pain in my bladder that keeps me uncomfortable. I have also done yoga, TENS, and relaxation techniques.
to the IC Network. 
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