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First Flare in Years, Damn that Mucinex DM!

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  • amy09
    replied
    This sounded interesting to me because I had a major flare last weekend and the only thing I did differently was take Zyrtec the night before I woke up feeling miserable. I know it's supposed to be the same thing as hydrozyzine but I don't know... it wasn't an infection and I'm not sure what else would've caused such a crazy uproar in symptoms.. cause I didn't have sex, hadn't traveled, and didn't stray from the diet. I think my bladder and urethra could actually have been irritated from all the anticholinergic meds I'm on since they dry out all the other mucus lined areas (throat, nose, etc). Anyway, hope you're feeling better!

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  • char158
    replied
    Mucinex DM just a 1/2 of a tablet did it for me.. i need to find a decongestant that will work.. i thought about just trying the syrup... what do you all suggest..

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  • char158
    replied
    Oh mY ,,, i just got through asking ICNDonna about this medication,,, and it caused a major flare.. glad to know now it was that reason..

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  • zyphia
    replied
    Flares

    Well thank you for the comments on your flares and how they feel. I have had some of those same feelings so I guess we are all in the same boat then huh? I had always wondered how they felt. I never went thru the horrors I hear some women go thru with menopause, I just stopped having periods at age 59, and am 68 now, so maybe IC will be my only cross to bear. I would hate to think what some of you go thru, reading your profiles and seeing the multitude of problems that you have to live with in addition to the IC. My biggest complaint is my Parkinson's has cut down on my beloved travel. I keep telling myself, tho, that it could be worse. And it could. I have wonderful memories. Thank you again for sharing.

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  • dottiepark
    replied
    It was a UTI! YIPPEE! Six doses of Cipro, two of Diflucan, and I am feeling pretty good.

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  • chhhb
    replied
    Thank you, Mary. I know I'll be feeling better, at least for a while, after the bladder instillation from the doctor. God bless!

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  • mary124
    replied
    Hope you are feeling better now, if not, take care and get lots of bed rest!
    I can take Mucinex DM without any problems but like Donna said we are all different. Maybe it was the dosage (?) 2 tablets. I don't know. I know that I can take also the Mucinex D -but with caution. Sometimes it causes my hear to race.

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  • chhhb
    replied
    Flares

    Mine feel like burning and stinging in the bladder and urethra. Also, a lot of urgency. I get relief for a while after going but as the bladder begins to fill with urine again the pain returns. Sometime the pain can even feel sharp, depending on the severity of the urgency. My bladder will actually feel like its locking up when I try to go, expecially during the night. Not a fun thing to go through for weeks or months on end.

    I hope you will be feeling better soon. I know how hard it is. I've been in a flare for almost two months with not many pain free days during that time. I hope the bladder instillations help soon. I've had four and the flare is still not letting up for more than a day or so after the instillation. I has to get better, though, because it always has. I'm trying to hang onto that right now.

    Good luck!

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  • dottiepark
    replied
    It's been 15 years and while my symptoms are well controlled by meds, I have never been in remission. After an appendectomy I went on a drug holiday...I lasted three weeks before the pain started up again.

    Zyphia, I am sorry you have so much pain and frequency, too. I just have pain, no frequency or urgency. Wouldn't you call it a flare if your symptoms increased wexponentially? My everyday pain (burning) is down to a 2 with meds...I call it a flare when the pain goes up past 6, and last week I was at an 8. There was some lower abdominal pressure, and spasms after urinating. I feel the pain mostly in my urethra, but I think it is just the way my pelvic floor is wired. Uro said my pelvic floor wa tight, so I'll be doing PT, too. What are you doing for your IC?

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  • zyphia
    replied
    Flares

    I have been skipping here and there, reading different threads and dropped in on this one because the title caught my eye: FIRST FLARE IN YEARS. I hate to sound like a dummy, but to the best of your ability, can some of you describe how your flares feel? I know mine (if they are in fact flares) are a burning, pulsating sensation in my bladder and my pelvic region feels like it is on fire, and I feel like I want to stick a lidocaine coated pipecleaner up my urethra to numb it so the burning pain will go away. I want to sit on the toilet, and sleep on the toilet so that when I have to pee every 10 minutes I won't have to make my way to the bathroom (I also have Parkinson's) to struggle with that task. I wonder if this is a flare in the same sense that you are having them? Maybe I am not having flares at all? Any replies are appreciated.

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  • chhhb
    replied
    Thanks so much. Walking around in pain while trying to function is so, so difficult. I get my next instillation on Tuesday morning and can't wait for the relief it gives, even though it's been temporary, so far. I want my old life back! Remission is a wonderful thing!

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  • dottiepark
    replied
    Chhhb, hope the instillations do the trick for you. Thank God I am feeling better with the meds.

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  • chhhb
    replied
    So sorry you are having such discomfort. I've had IC for twelve years, too, with only a handful of bad flares. I'm in one now due to allowing my gynecologist to lower my HRT dosage to drastically and it brought on a terrible flare that I'm getting instillations for. We're all so different as to what can trigger a flare. I also can't take Airborne for colds. Tried it for a couple of days not realizing that it has tons of Vitamin C and it really put me in a terrible flare for days. We live and learn, I guess, and I do appreciate your putting it out there about Mucinex DM. Take care and hope you feel better soon.

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  • dottiepark
    replied
    Doubling up on Elmiron, more Urelle, a little Cipro, and PT. Fingers crossed....

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  • dottiepark
    replied
    These were the 12-hour tablets...the DM is for dextromethorphan...and I know others can take this stuff without problem. The doc had me take two before bed...maybe the dose was the issue, who knows. But seriously, I forgot how much I have to avoid on the IC diet...I know the obvious stuff, like acids, but dang I forgot about the soy and just had a cheese sandwich on multigrain bread. Oh please may the IC gods have mercy on me!

    mbhbarb, funny how you start rooting for bacteria! I do the same thing.

    Thanks for the sympathy, folks.

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