Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
Hello, I am sechduled to get a PST on Monday, but I am extremely nervous about it. I have heard that it can cause a lot of irritation and make symptoms worse. Has anyone had any experiences with a PST? I would really appreciate your feedback.
I was diagnosed by hydrodistention and have never had a PST. However, many who post here have and have reported that it was painful for only a very few minutes because the solution is immediately drained out and an analgesic instilled to calm the bladder down. I hope it goes well for you.
Warm hugs,
Donna
Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
I was diagnosed based on symptoms, history, and the PST. Luckily I didn't know what that test was or even that my doc intended to do it until minutes before it was done, or I'd have worried myself silly in anticipation! You'll probably hear a range of experiences, mine was relatively uneventful. Given the choice of having dental work or another PST, I'd probably have to flip a coin as to which I disliked more.
The worst part of the PST for me was actually the insertion of the catheter. I've since heard it's helpful to take deep breaths & relax, but I didn't know that at the time. Instead I tensed up, fighting that thing the entire way in so I'm not sure I wasn't the cause of much of that insertion discomfort. But still, it wasn't anything I couldn't handle.
When they put the potassium in it did hurt. Similar to the burn from a major IC flare. But the very moment I reacted they drained it out, putting something in that numbed my bladder, and the whole thing was over before I knew what had hit me.
My next fear was what happens when this numbing stuff wears off? I was scared that the burning pain would still be there, and then who knows for how long!? That didn't happen. I was slightly irritated for about 24 hours after, but it wasn't enough to stop me from doing anything. A day later I was back to my normal self.
I hope it goes well for you Monday.
Vicki
"The happiest people don't necessarily have the best of everything; they just make the best of everything they have."
Tweet
Comment