I have been talking with several about my IC and have the additional symptoms of extreme fatigue, swollen lymphnodes everywhere, pain in every joint, rash on my face and chest (worse when going outside), and can't sleep at night--not to mention extreme pain. I also have where my arms and legs will occassionally go numb or prickly feeling for no reason and had a really serious episode with it after my baby was born last spring where they were so numb I couldn't tell the doctor was sticking needles into my feet making them bleed! I was dizzy at the time with a bad ringing in my ears and low potassium--but that was about all I remember other than the only thing helping me was "corticosteroids"--which gave me almost immediate and complete relief. After about 5 months of steroids those symptoms seemed to clear up.
On talking to the local chapter for Lupus patients, it looks like there is something called "Lupus Cystitis"? Can anyone tell me more about this or let me know if they have similar symptoms/experiences and what I should do? I have at this time only been diagnosed with IC itself, but all the other symptoms seem unrelated from my understanding and I have been sick over a year now and just ready to get this thing figured out and get better!!!!
Thanks! Nicki
On talking to the local chapter for Lupus patients, it looks like there is something called "Lupus Cystitis"? Can anyone tell me more about this or let me know if they have similar symptoms/experiences and what I should do? I have at this time only been diagnosed with IC itself, but all the other symptoms seem unrelated from my understanding and I have been sick over a year now and just ready to get this thing figured out and get better!!!!
Thanks! Nicki
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