Hi Everyone
First off I want to thank everyone for posting and sharing - it has been a huge help reading everyone's experiences.
I have a long story to share and if it can help anyone or if anyone has suggestions it would be nice to hear from you. I am 27 years old and a mother of three kids.
Back in December 2008 I woke up in terrible pain and when I saw blood in the toilet I assumed it was my period coming early. It literally took me a half a day to figure out that all that blood was in my urine - (that's how red my urine was!!!)
My gynecologist prescribed cipro......ten days later when I still had symptoms he prescribed Macrobid.....when I was still feeling pressure and complaining of frequency he sent me to a urologist.
That urologist preformed a cyscotopy (freaking killed!) and told me everything is basically ok but I do see a slight inflammation of urethra - go on bactrim for 30 days.
Eventually the pain subsided....but for some reason I was still left with all this frequency! 24 times - and that was just in the daytime!
I made my rounds (I live in NY) and finally found a urologist I liked and she told me to immediately get off of hormonal birth control pills - because the bladder is very sensitive to hormones. (this made a ton of sense to me because I had just started a new birth control pill a month before this bad uti)
Because of the frequency I was also put on Detrol.
Within a month my frequency was cut in half and I was not waking up at night.
eventually my frequency crept up again....we tried a higher dose of detrol switched to vesicare (which i didtn tolerate because of headaches) but nothing helped.....I started pelvic floor therapy to "retrain" my bladder - I went for two months - and was VERY dissapointed. The therapist really did not know what to do with me.....and was treating me as if I was incontinent - which I wasnt and telling me to visualize I was on a beach everytime I sat on the tiolet - and I would like to stress that at this point my probelem was ONLY frequency - not pain
I eventually quit therapy - at the same time I was diagnosed with HASHIMOTO disease and PCOS
I was very convinced that either the thyroid or hormonal imbalance was connected to urinary frequency - but as you all know the thyroid endo specializes in thyroid and the reproductive endo specializes in hormones and they all shook their heads at me when I bought up urinary freq
long story short.....I got synthroid for my thyroid....I started menstruating again and was able to get pregnant.....
For 9 months of pregnancy I thought I was cured. I was going way less then when I was not pregnant! I gave birth 10/10/10 to a healthy baby girl!
Then a month after I thought I had a UTI - which came back negative - I went every week for three weeks - it was still negative.
By my checkup they discovered I had vaginitis - I treated it - it did help pain a little bit but not much. I felt pressure and had frequency like crazy.
So here we are now my baby is 5.5 months. I have terrible frequency, pressure and worst of all sex hurts while I am with my husband and for days after.
So the first thing I did was contact my urologist - who said we know you are very sensitive to hormones - when you are ready to stop nursing and stop the micronor (progesterone only pill for nursing women) then come over and I will examine you - basically saying that nursing supresses hormones and your bladder is very sensitive. Also, reason I felt so good when I was pregnant is because body is awash in hormones. She also suggested that if sex hurts to start using a little ESTRACE.
So I started estrace....and it did help a little.....but then I got terrible pain.....
at this point....I went for a second opinion.
This doctor discovered that I had a whopper UTI (was it from using estrace - I dont know? he seemed to think it was from when I gave birth and was catherized although why it didnt show up till now is beyond me!!)
So again I went on antiboitics - a week later there was still pain
According to his examination I have Vulvodynia, vestibulus?, and Pelvic Floor dysfunction - I should start Pelvic Floor therapy, take elavil and atarax
This was two weeks ago
Last week was my appointment with Dr Moldwin (which I booked two months ago)
According to Dr. Moldwin I have Pelvic Floor dysfunction (muscles spasms)
I should make sure not to strain, take hot baths and start VALIUM
he also said that It cud be there is an underlying bladder issue but first have to deal with Pelvic muscles. (I also seem to think there is an underlying bladder issue because the whole pain thing is new.....before preg it was just frequency - i think my pelvic floor got messed up from all the utis and freq)
So that is where I am holding right now -
I booked my physical therapy with Gopi at brooklynhealthpt
I am desperately trying to wean my baby so I can start Valium
and now I hit a problem.
what birth control to go on? Hormonal bc pills seem to be a big no-no for me. condoms are not an option
will an iud hurt me if I have Pelvic Floor dysfunction - will it do more harm than good????
Please if somebody has experience with IUD - help me out here!!
each doctor says something else....one says its ok - one says dont even go near that area
I would also love to hear from anyone who has thyroid disease (by dr. moldwin appt - he said you know this week I have seen so many patients with hashimotos!!)
and if you have PCOS - please be in touch as well.
Please respond....and thanks so much for reading my post
First off I want to thank everyone for posting and sharing - it has been a huge help reading everyone's experiences.
I have a long story to share and if it can help anyone or if anyone has suggestions it would be nice to hear from you. I am 27 years old and a mother of three kids.
Back in December 2008 I woke up in terrible pain and when I saw blood in the toilet I assumed it was my period coming early. It literally took me a half a day to figure out that all that blood was in my urine - (that's how red my urine was!!!)
My gynecologist prescribed cipro......ten days later when I still had symptoms he prescribed Macrobid.....when I was still feeling pressure and complaining of frequency he sent me to a urologist.
That urologist preformed a cyscotopy (freaking killed!) and told me everything is basically ok but I do see a slight inflammation of urethra - go on bactrim for 30 days.
Eventually the pain subsided....but for some reason I was still left with all this frequency! 24 times - and that was just in the daytime!
I made my rounds (I live in NY) and finally found a urologist I liked and she told me to immediately get off of hormonal birth control pills - because the bladder is very sensitive to hormones. (this made a ton of sense to me because I had just started a new birth control pill a month before this bad uti)
Because of the frequency I was also put on Detrol.
Within a month my frequency was cut in half and I was not waking up at night.
eventually my frequency crept up again....we tried a higher dose of detrol switched to vesicare (which i didtn tolerate because of headaches) but nothing helped.....I started pelvic floor therapy to "retrain" my bladder - I went for two months - and was VERY dissapointed. The therapist really did not know what to do with me.....and was treating me as if I was incontinent - which I wasnt and telling me to visualize I was on a beach everytime I sat on the tiolet - and I would like to stress that at this point my probelem was ONLY frequency - not pain
I eventually quit therapy - at the same time I was diagnosed with HASHIMOTO disease and PCOS
I was very convinced that either the thyroid or hormonal imbalance was connected to urinary frequency - but as you all know the thyroid endo specializes in thyroid and the reproductive endo specializes in hormones and they all shook their heads at me when I bought up urinary freq
long story short.....I got synthroid for my thyroid....I started menstruating again and was able to get pregnant.....
For 9 months of pregnancy I thought I was cured. I was going way less then when I was not pregnant! I gave birth 10/10/10 to a healthy baby girl!
Then a month after I thought I had a UTI - which came back negative - I went every week for three weeks - it was still negative.
By my checkup they discovered I had vaginitis - I treated it - it did help pain a little bit but not much. I felt pressure and had frequency like crazy.
So here we are now my baby is 5.5 months. I have terrible frequency, pressure and worst of all sex hurts while I am with my husband and for days after.
So the first thing I did was contact my urologist - who said we know you are very sensitive to hormones - when you are ready to stop nursing and stop the micronor (progesterone only pill for nursing women) then come over and I will examine you - basically saying that nursing supresses hormones and your bladder is very sensitive. Also, reason I felt so good when I was pregnant is because body is awash in hormones. She also suggested that if sex hurts to start using a little ESTRACE.
So I started estrace....and it did help a little.....but then I got terrible pain.....
at this point....I went for a second opinion.
This doctor discovered that I had a whopper UTI (was it from using estrace - I dont know? he seemed to think it was from when I gave birth and was catherized although why it didnt show up till now is beyond me!!)
So again I went on antiboitics - a week later there was still pain
According to his examination I have Vulvodynia, vestibulus?, and Pelvic Floor dysfunction - I should start Pelvic Floor therapy, take elavil and atarax
This was two weeks ago
Last week was my appointment with Dr Moldwin (which I booked two months ago)
According to Dr. Moldwin I have Pelvic Floor dysfunction (muscles spasms)
I should make sure not to strain, take hot baths and start VALIUM
he also said that It cud be there is an underlying bladder issue but first have to deal with Pelvic muscles. (I also seem to think there is an underlying bladder issue because the whole pain thing is new.....before preg it was just frequency - i think my pelvic floor got messed up from all the utis and freq)
So that is where I am holding right now -
I booked my physical therapy with Gopi at brooklynhealthpt
I am desperately trying to wean my baby so I can start Valium
and now I hit a problem.
what birth control to go on? Hormonal bc pills seem to be a big no-no for me. condoms are not an option
will an iud hurt me if I have Pelvic Floor dysfunction - will it do more harm than good????
Please if somebody has experience with IUD - help me out here!!
each doctor says something else....one says its ok - one says dont even go near that area
I would also love to hear from anyone who has thyroid disease (by dr. moldwin appt - he said you know this week I have seen so many patients with hashimotos!!)
and if you have PCOS - please be in touch as well.
Please respond....and thanks so much for reading my post
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