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  • #16
    The Gelnique that I use works very well on my bladder spasms. It's the gel transdermal form of Oxybutynin. I did have some nausea from it but no constipation or severe dry mouth. I found I could get away with using it about every three days. I don't know the cost though of the gel form as I'm still using samples from the dr.

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    • #17
      Have you tried Valium to use as a muscle relaxer? Many people here use it as a vaginal suppository but my pt who does pelvic floor therapy said she has male patients who use it as a rectal suppository. It's pretty inexpensive as a generic.

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      • #18
        Originally posted by crazyivan45 View Post
        I am currently on elavil (amitryptyline) and while it worked great for about a week, its not having much of an effect anymore. On 10mg, tried upping to 20 but it made me a zombie and suicidal. Don't really have a lot of support from family and friends. Friends don't understand, family (parents) are going through bankruptcy and forclosure, so they have too many of their own problems. I have tried klonazepam (was prescribed it years ago for anxiety, kept it around in case of emergencies) and it has helped. So have regular muscle relaxers. Can PFD symptoms get worse with certain foods or drinks? have not tried hydroxyzine, but the first uro gave me sudafed to try and stop the urine leak and i ended up being unable to urinate after a few days and had to cath until my prostate shrunk down a bit. Also, my pain actually improves when my bladder fills up and usually starts or gets worse when my bladder is empty. Spasms are also less intense when my bladder is full then when it is empty

        Currently live in Memphis, TN
        Hello, first let me say I'm sorry your suffering with pain, I too live in memphis and I see DR. THomas Shelton he treats IC and he diagnosed me and I've been getting instill for 5 weeks now, my symptoms were those of a UTI, constant bladder pain and back pain, going to the bathroom over 30 times a day, my sytoms have almost disappeared with the instills and taking vesicare 10mg's daily. I have two more instills and then take a two week break to see what happens. Is he one of the uro's you've tired I hope not because I've had very good luck with them.
        Last edited by greeneyes; 04-13-2011, 01:39 PM.
        IC diagnosis 3 weeks ago.
        Vesicare 10 mg once daily
        IBS and Gerd-Zegerid
        IC diet
        Elmiron 100 mg three daily
        Hydroxyzine 25 mg at night
        Amitriptyline 10mg at night
        Diovan 60/12.5 daily
        Topral 50 mg daily
        Zoloft 100 mg at night
        Klonopin .5 twice daily

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        • #19
          If you go to http://www.ic-network.com/glossary/glossaryfda.html you'll find what elmiron is called in different countries.

          Donn
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #20
            Its been a while since I have posted, and in that time things got a little worse before improving significantly. I am now about 80-100% symptom free, every day. I still have flareups every few weeks, lasting from a few hours to a few days, but on my 'bad days' (unfortunately having one today) I feel like as well as I did on my 'good days' back in April. Pain is virtually nonexistant, just some urgency/frequency but nowhere near as bad as it was. Currently taking 10mg amitriptyline at night and 500mg twice a day of cholorazoxazon, as well as cystoprotek twice a day. I was 100% symptom free before a minor flareup last friday night, most of which disappeared over the weekend but still having some lingering urgency/frequency today. I'm pretty sure that is stress related, as I have been avoiding all of my trigger foods lately. Ive tried adding atarax into my regime but it really knocks me out, so I havent had a chance to tell if this may be the one final piece to get me back to 'normal.' I'm optimistic, but I know my symptoms are likely to return, as even remissions don't last forever. I'm just finally glad to be feeling mostly normal again. I've been on the cystoprotek for only a month but I can tell its already making a huge difference. I am hoping the lingering symptoms disappear over the coming months as it starts to repair the bladder lining. If anyone is feeling like there is no hope and its never going to get better just hang in there and keep fighting. You WILL find something that works for you

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            • #21
              That's great! Thank you for sharing your good news. It gives those who are having tough times some hope that they will feel better.

              Warm hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #22
                glad youre feeling better i am too
                Newly IC diagnosed as of February 2011.

                Medications I'm on that seem to work:
                Zoloft- one once a day
                Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                Failed Meds:
                Elmiron-after 4 months,digestive side effects got to be too much
                tramadol-allergic
                DMSO treatments(5-6)
                probiotics

                THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                AROMATHERAPY-candles,incense
                Village Naturals Aches and Pains Peppermint Bath Salts
                Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                ACUPUNCTURE/HERBS
                Significant pain relief so far.

                MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                Add me on facebook Angela Hasic

                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                Lord, make me an instrument of your peace;
                where there is hatred, let me sow love;
                when there is injury, pardon;
                where there is doubt, faith;
                where there is despair, hope;
                where there is darkness, light;
                and where there is sadness, joy.
                Grant that I may not so much seek
                to be consoled as to console;
                to be understood, as to understand,
                to be loved as to love;
                for it is in giving that we receive,
                it is in pardoning that we are pardoned,
                and it is in dying [to ourselves] that we are born to eternal life.

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