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  • burning of the urethre

    ]I have had IC for 2 years but recently with in the past month and half I have severe urethra burning. over the counter meds and urelle don't help. Any suggestions. Please Help

  • #2
    For me cutting out high & moderate oxalate foods have helped. Also I have vaginal dryness & Clamara (estradiol) Patch has helped. I also take calcium citrate w/o vitamin D 2 or 3 times a day. I take magnesium with it. Good luck, I still looking for more things to help even more.

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    • #3
      see your uro and start a treatment plan and stick with ic diet.
      <center>
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      • #4
        Err, this may be a really stupid question but did those over the counter meds treat bladder infections? Have you checked if you have a UTI? Whenever I had more of a burning sensation in my urethra more then normal it was usually because I had a UTI...
        Diagnosed with IC when I was 14 (in 2003)
        Diagnosed with IBS when I was 19 (in 2008)
        -At 14 had a cystoscopy with hydrodistention (confirmed IC, after only 3 months of searching)
        -At 19 I had another cystoscopy with hydrodistention (because of elmiron side effects)
        -From when I was 14 to 19 I was on Elmiron, but had a lot of side effects
        -Had a colonoscopy (because of elmiron side effects) - after which I was diagnosed with IBS.
        -Did instills weekly for over a year (after that I got chronic uti's)
        -Thought I was in remission for a few years, however several of the uti's I thought I was getting were actually bad IC flares, and the urgent care drs never told me nothing was growing out in the culture.
        -Medications that I'm taking right now that help with IC symptoms:
        -hydroxyzine hcl 25mg
        -amitriptyline hcl 35mg
        -Cyclosporine (unmodified) 400mg (dosage subject to change)
        Overall I have IC, IBS, Pelvic Floor Dysfunction, Recurrent bladder infections, and some menstrual issues as well.

        -Brandy

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        • #5
          I don't know of an over the counter medications that will get rid of an active bladder infection. Burning can mean infection so it does warrant testing.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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          • #6
            I was check for an UTI but no bacteria was found. Uro said its just a symptom of IC. I have been watching what I eat. Its been over a month now and still have the burning, Urelle has helped a little. I have read the Pyridium helps with urethra burning, has anyone tried it.

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            • #7
              One of my biggest problems with IC is burning. It is my most annoying and most prevalent issue with it. The reason it took me so long to find out I had it was, I kept being tested for UTIs and they came back negative. This went on for over a year. So, I get what you mean about the burning and not having a UTI. I use a medicine that is prescription called UTA. It turns your urine blue and is kind of expensive, but it relieves the burning if I get a flare. I take it every 6 hours for about 3 days and usually get a lot better. It has 4 different medicines in it that help your bladder, maybe check it online. I haven't seen many people on this forum that take it, but I think they take things that are similar.

              Some of the things over the counter just make you numb, but don't have any healing properties as I understand it. Hope that helps!
              treatment:
              -I follow the IC diet to the letter
              -acupuncture and chinese herbs
              -Prelief
              -UTA
              -instillations as needed
              -beginning yoga and specialized yoga for breathing and relaxation
              -Wellbutrin
              -Klonopin


              main symptoms: pain and burning

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              • #8
                I have had the same urethra burning for a month. Urelle isn't cutting the pain what have you tried?

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                • #9
                  I use UTA and it does haelp with the burning.Have you tried 1 tsp.baking soda in 8 ounces of water? That helps with burning too but baking soda is high in sodium so if you have to watch your salt intake so not use excessively.

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                  • #10
                    Thank You so much. I have an appointment with my uro tomorrow I will ask her about UTA. Im on urelle now do you know if it is the same?

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                    • #11
                      They are similar. I was on Urelle and then my insurance wouldn't pay for it but will pay for UTA.It must be cheaper.I have not had to use it for 6 months or so. I am in a "medication"remission with Elmiron. No pain or burning for quite a while.

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                      • #12
                        I am so happy for you. I hope you never have to worry about this again. thanks for your help, it means alot. good luck.

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                        • #13
                          Thank you.I am on guard all the time though. I am not cured but I enjoy the
                          pain free time I have now. Good luck to you,I wish you the same luck as me.

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                          • #14
                            just got back from the uro. She put me on Prosed DS and antibiotic small dose every night for two weeks. If this don't work, she is going to do another scope to see if there is something else going on. Hope the meds work.

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                            • #15
                              Susan Lynn,

                              This was one of my biggest complaints early on. Elavil and PT helped a lot. I no longer have urethral burning.

                              Suzanne

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