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  • Lost in it all

    Hi my name is Danyelle I am 21 in a couple months. I used to be very happy and full of life though I have had bladder issues for as long as I can remember. I had nocturia until I was in middle school. It has gotten worse so quickly and I am afraid. I am about to be out of insurance pretty soon so not only will I be out of medical help, I will find it difficult to find a trustworthy counselor I can afford. I have two sets of letters behind my name CNA, CPhT and still have not been able to keep a reliable job or begin my career as a pharm tech. I just recently got out of the hospital from a possible ovarian cyst rupture. I have been through a lot of trauma and I am reaching the end of my rope. It would be nearly impossible for me to get statuatory help b/c it would be hard to prove I have had this disorder from birth and even if I manage to get a good job with benefits I dont know whether I can keep it if i have days where I use the bathroom every fifteen minutes literally at times. I am just lost and very depressed. Am I the only one my age with all these issues: IC, ovarian cysts, tachyarithmic episodes. I am so tired of people treating me like I am just making excuses; I want to succeed but I can't help but think this is just my lot in life and I guess this is my last ditch effort

  • #2
    No you are not the only one who is young.. I'm only 21. I have IC, VV, fibro, PCOS, IBS, fructose intolerant and GERD. I'm not sure if you were aware but your parents can have you on their insurance until you are 26 or 28 depending on their policy. That just changed this year. It doesnt matter if you are in school or married. Thank god my dad added me back on his plan cause without it I would be in serious trouble.

    What type of meds are you on? I used to go pee 20-30 times a day...It felt like every 30 mins...When I first got depressed I was in denial and didn't fully understand what IC entailed.. I have now realized that I had to make life changes for my health. These included: IC diet(giving up pop, chocolate), taking my medication religiously, PT, couseling and taking it easy. This has been a long and hard road for me also. I am a full time college student and I work full time...It is hard and overwhelming but I want to make the most out of life. There will always be setbacks and hard times but you have to know that you will get through them. The things that help me the most are: taking my meds, heat, warm baths, eating right and PT. Pt has helped with frequency. My meds help with frequency and urgency but not pain. Some days are good and some are bad. I have been to 100+ dr's and finding a caring, understanding and helpful dr can make a difference.

    If your medical insurance is about to run out have you checked into help programs? Here in ohio they have carenet which is insurance for free. You get to see dr's at a cheaper price than without insurance. Visits can run anywhere from 10-30$ and it also covers hospital visits.

    if you need to talk pm me or you can add me on fb gina mclaughlin. I'm from toledo, ohio.
    Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

    Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

    Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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