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  • Not New, but need some help...

    Does anyone flare (urinary frequency) from exerise?

    I started a workout program at the gym this Monday. Monday I did strength training, Tuesday I did cardio on eliptical, and today I did strength training. Well, yesterday and today, I have been flaring.

    Also, everyday I get a decaf. vanilla latte @ Starbucks and I take 3 prelief with it. Anyhow, my husband says its the coffee, but I've been fine up to this point with the coffee. So that's why I'm thinking it's the exercise.

    I would appreciate any input, anyone has.

    Thank you.

  • #2
    For me I found that prelief doesn't always work with coffee, even if it's decaf.
    Starbuck's coffee is among the most acidic and I can't even drink their decaf even if my bladder is feeling good. Sometimes exercise will bring on bladder irritation for me also. I never know when though, so it makes it really difficult to judge when I can exercise.

    Comment


    • #3
      Originally posted by earthlady View Post
      For me I found that prelief doesn't always work with coffee, even if it's decaf.
      Starbuck's coffee is among the most acidic and I can't even drink their decaf even if my bladder is feeling good. Sometimes exercise will bring on bladder irritation for me also. I never know when though, so it makes it really difficult to judge when I can exercise.
      I have been fine with 1 decaf latte a day. The flaring started this week, that's why I think it's the exercise. Maybe if I just keep working out, my body will get used to it and stop flaring. I guess I'm lucky I'm not in pain and it's just urgency (but that's a real pain too!). I always worked out before I got IC, which I've had for a little over a year.

      Does anyone else have problems with working out? What did you do to resolve it? Any suggestions?

      Thanks so much.

      Comment


      • #4
        You might want to check to see if the Starbucks folks changed coffee --- they do have a lot of blends, at least one is low acid, so that could be it. The extra exercise could be a problem as well.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          If you are slightly dehydrated after execise, your urine will be more concentrated, and urinating may cause discomfort.

          Comment


          • #6
            Well, I'm skipping my coffee today and not exercising to give my body a break. Tomorrow I'm just going to do cardio and skip the coffee and see what happens.

            Thanks everyone.

            Comment


            • #7
              Well, I've stopped drinking coffee completely while I figure this flare thing out. Thursday I took the day off to recover from my flares and I was fine. Friday I walked fast 2 miles on my treadmill and I was fine..no flares. Today (Saturday) I went to the gym and did lower and upper body strength training, and tonight I have a flare. So, I'm thinking that I can't do any more resistance training for my lower body.

              My plan from here is to continue with my cardio and just do upper strength training. I figure I'm still going to be able to tone up my lower body with the cardio. Just kind of disappointed I can't work my lower body.

              I HATE THIS IC!!!!

              Comment


              • #8
                Oh - I sure know that feeling. Sounds like you at least can figure out what might be causing a flare.

                Comment


                • #9
                  Hello.
                  Maybe you have pelvic floor dysfunction. When I do lower body strengthening exercises I have to stretch for at least fifteen minutes to prevent flares. Pelvic floor spasms are a major cause of my flares.

                  It is something a doctor can assess you floor and a physical therapist can help you over come.

                  Im not diagnosing you it I am just suggesting a possibility

                  good luck to you
                  Last edited by gatorgal; 05-08-2011, 02:44 AM. Reason: incorrect grammer
                  current meds- ditropan 5mg xl, neurontin 300 mg. zanaflex for pelvic floor spasms Most meds, IC meds included, cause me bladder pain

                  previous med- elmiron( nothing after 8 months), atarax ( to sleepy), ditropan ( retention), Cymbalta, cystoprotek( worsened flare) has helped many others, aloe vera ( worsened flare), lyrica( irritated bladder.

                  interstim implant (reduces my ic pain)January,2007

                  Comment


                  • #10
                    If you're doing two miles on your treadmill, you are exercising your lower body. I'm glad you're feeling better. I think we can have a tendency to overdo when we feel good when it would be better if we stick to some limits even on the best days.

                    I have to agree that IC is unspeakably vile! but I won't allow it to either run or ruin my life.

                    Huge hugs,
                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Originally posted by ICNDonna View Post
                      If you're doing two miles on your treadmill, you are exercising your lower body. I'm glad you're feeling better. I think we can have a tendency to overdo when we feel good when it would be better if we stick to some limits even on the best days.

                      I have to agree that IC is unspeakably vile! but I won't allow it to either run or ruin my life.

                      Huge hugs,
                      Donna
                      Thanks Donna!

                      Comment


                      • #12
                        At a loss

                        Hi out there,

                        It has been a while since my last post but I am here today because I am at a total loss. I have had IC for 12 years and it just keeps getting worse. I have never really made any real progress. I have tried all the drugs, all the pelvic floor and behavioral therapy, all the diet restrictions, and all the invasive distentions and cystoscopies. I am 31 years old and at a total loss at this point in my life. I am starting another string of infections that I can't get rid of and my doctor has basically told me that I have exhausted all treatment options. I need to find a new doctor, I know that much! I am trying to remain optimistic but am losing my grip on staying upbeat. Realistically, I have resigned myself to a lifetime of pain and suffering, heavy pain medications and the feeling like I will never be worthy of someone's love. I am divorced and have been dating a younger man for 7 months, but I don't think he really gets the situation. Part of that is my own fault for hiding the embarassing details surrounding my IC, he really has no idea how bad it is. My tolerance to the pain medication keeps going up, so I am back up to a higher dose that I had already weaned myself off of last year. That makes me feel like a failure and I know my body is addicted to all the medications. I want to have a baby soon but I don't see how that really will ever happen. I have other reproductive issues that have decreased my chance of ever having a successful pregnancy by a lot. What is it about IC that makes some women feel ashamed and somehow unworthy of love or happiness? For me, this disease has struck at the very core of what makes me a woman..sex, love, compassion and patience have all been diminished and I have been left confused. How do you deal with these feelings within yourself?

                        Professionally I have never been in a better place but it is all an act. If I really slow down to stop and take care of myself, I fear I will never get up again. I used to live on the West Coast, but have recently returned home to the Midwest to my family and the minds are much more closed off here to these issues then I am used to. I am becoming more and more depressed again and don't really think there will ever be any answers for me. This disease ebbs and flows, and right now I am at an extreme low. Any encouragement would be greatly appreciated right now. Thanks.

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