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  • ICNDonna
    replied
    to the IC Network

    You've already been given some good advice --- to see a urologist. I would just like to add that if you scroll to the top of this page and click on "Professionals" you may be able to find a uro near you who has been recommended by another interstitial cystitis patient.

    Sending healing thoughts,
    Donna

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  • Bronti12
    replied
    Thankyouu all for your comments

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  • Linda May
    replied
    You need to see a good URO ASAP.

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  • Mothergoose
    replied
    You may have retention issues.

    You pee but not all will come out, so a few mins later you get the feeling you need to go again and probably can go more.

    I too had an ultrasound more times than I can count. I would go with a full bladder they would measure my bladder and the volume of urine in it. I would go pee, come back and be measured again, and so on until I could no longer go again. At this point I still had cc of urine in my bladder on average I pee about 150-cc at a time, unless the retention is bad then I pee up to about cc at a time.

    I always feel the need to go, my bladder is always full, I get frequent UIT's from the urine not coming out.

    This is very uncomfortable, when I can't pee I can go up by a lb a day.

    So once they knew I had retention from the ultra sound, I had a urodynamics test done, I know quite a few people write in that it is awful, it wasn't too bad. But it did proved my bladder doesn't function properly, doesn't empty and it is not all in my head.

    The first thing the uro said to me was "it took you 4 !/2 mins to pee 300cc, this should take you less than 30 secs to do this" What do you think I have been trying to tell all of you Dr's. (I am not crazy)

    I would go for days not being able to wear pants from my bladder being distended. This uro had previously said to me I don't understand why don't you just pee, you must have not learned how to as a child. (how stupid can you get)

    So this answered a lot of questions for me, but 3 uros said I did not have IC, the next uro did a cysto/hydro underanastetic and said the other uros must have not taken into account that my bladder would need to be stretched much more than a normal person for the IC to show up and I defiantly have IC too.

    Not that I was happy to have these things but happy to get a diagnoses, so I could get on with a treatment plan.

    2 years later after 30 years of suffering I am doing much better.

    I would suggest you ask for a urodynamics test to be done, and yes I too did have the bleeding with clots from time to time.

    MG

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  • greeneyes
    replied
    I think you need to make an appt to see a good uro, right your symtoms down and take it from there. The uro will do many test to rule out other things that can be causing your issues. Not much help but if I were you thats where I'd start.

    Leave a comment:


  • Bronti12
    started a topic Need Some answers please!

    Need Some answers please!

    Hey there, im and 18 and have been having alot of bladder plan for a year or 2 now. all along i thought it was frequent infections that i was experiencing but a test in the doctors office would show a infection but would be sent to the lab and nothing would show up. i recently went for a ultersound and showed that there was still water in my bladder, after i peed. It hurts my stomach to pee constanly, i sit on the toilet after i pee feeling like i still have more, but nothing comes out. i have had blood in my urine a few weeks ago sorda like clots, when i feel like i have to pee right away i get a bad stomach ake. my lower stomach looks swollen. it feels like i have a never ending infection i just got off a 7 day iv for a possible infection and it still hurts. i have no idea what this is and its getting very annoying, any comments would help!
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