My case was diagnosed several years ago. I went through all the treatment options, basically, including instills twice daily. It went into remission for about a year after a blood transfusion. Well, I took iron supplements, but my iron levels became dangerously low again, and the IC came back. So I received another blood transfusion (each transfusion was for 4 units of blood), and all the symptoms have gone away again. I don't understand it. Neither does my urologist. But I thought I would post this for any women with this problem since it might help. I posted after the first transfusion, but I wasn't so sure as I am now of the odds being so overwhelmingly favorable for the affect of the transfusions affecting my IC
It also explains maybe why none of the traditional therapies worked out for me.
My urologist had given up on me, and I was in a low, low point of my life. I couldn't hardly put my clothes on without being tired, and had the most horrible pain level imaginable. So if you have this problem, get it checked out! Don't go without checking and suffer as I did. I may or may not be highly atypical for IC, but there may be others like me, and I don't want anyone to suffer like I have if it can be avoided.
It also explains maybe why none of the traditional therapies worked out for me.
My urologist had given up on me, and I was in a low, low point of my life. I couldn't hardly put my clothes on without being tired, and had the most horrible pain level imaginable. So if you have this problem, get it checked out! Don't go without checking and suffer as I did. I may or may not be highly atypical for IC, but there may be others like me, and I don't want anyone to suffer like I have if it can be avoided.
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