Hi, I'm new here but I've been lurking a while. I've been having what was diagnosed as "recurrent UTIs" since I was a teenager, but the cultures always show up negative but with elevated white blood cells. Usually my symptoms come and go, with anywhere from a few weeks to a few years between flares. I'm 23 now, I can't believe that I have been having this problem EIGHT YEARS without any help.
I have had two urodynamics tests and they both came back normal except for the fact that I was clenching/pushing too much. The problem was that they were literally the two most excruciating experiences of my life by far.
Right now I am having my second of what I consider bad flares. Pain level is 9/10, I have to wake up multiple times in the night, constantly take Pyridium, I can literally feel my urethra spasming after I pee, and severe urgency (sometimes I don't make it to the bathroom). The first one was about three years ago and lasted a few months. I am on week 3 of this one now.
Over the years I went to three urologists in the same group. All of them insisted on a cystoscopy before they would treat me, but I am unwilling to have anything else stuck up my urethra.
One of them told me, "Well if sex hurts, you should stop having sex." Another one told me that my problems were all in my head. I have an appointment with a new urologist in a different group, but it's not until June 8 and I somehow have to survive until then. Wish me luck!
I have had two urodynamics tests and they both came back normal except for the fact that I was clenching/pushing too much. The problem was that they were literally the two most excruciating experiences of my life by far.
Right now I am having my second of what I consider bad flares. Pain level is 9/10, I have to wake up multiple times in the night, constantly take Pyridium, I can literally feel my urethra spasming after I pee, and severe urgency (sometimes I don't make it to the bathroom). The first one was about three years ago and lasted a few months. I am on week 3 of this one now.

Over the years I went to three urologists in the same group. All of them insisted on a cystoscopy before they would treat me, but I am unwilling to have anything else stuck up my urethra.

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