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In need of advice

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  • In need of advice

    I'm new to this and I'm having trouble figuring out where to post my question.
    I am having all the same symptons as many of you. I though I had a bladder infection only to have negative results, of course after taking 3 different antibiotics. Had a pelvic ultrasound nothing, contrast bladder x-ray all nothing. Whn I have suggest IC I was told I would never be able to hold as much fluid as during the bladder x-ray. What they don't seem to get is that is not always the case sometimes all I ever do is pee especially after intercourse but because it's not all the time it can't be IC. I feel like I'm losing my mind and grasping at straws. I'm afraid to get another opinion because I think they are going to say the something. I just don't know what to do!

  • #2
    Welcome, sometimes it takes awhile to get a dx of IC, If you don't feel comfortable with the doctor you have now then seek a 2nd opinion. Please try the IC diet after all it can only help. Hope you find out whats going on and soon.
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily


    • #3
      Even though most IC bladders have reduced capacity, a normal, or larger than normal bladder does not rule it out. One thing you might do is to keep a voiding diary, noting times and amounts urinated, and take that with you to your next uro appointment. You could also give the IC diet a try. Some of us find that helps more than anything. You'll find the latest food list at the link in my signature below.

      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        If youre not getting adequate and satisfying answers from your current Dr by all means seek another opinion.
        Whether you have IC or not is irrelevant at this point; you're obviously suffering and you deserve answers.

        Wishing you well.
        (o.O )
        (> < ) This is Bunny. He's on his way to world domination.