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Toxic Doctor, who needs him!

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  • Toxic Doctor, who needs him!

    I am a 51 year old women and I have had problems with my bladder for as long as I can remember. When I was a child I thought you knew you needed to go to the bathroom because you got a pain in your stomach. I was 14 when I was taken to emergency after doubling over in pain. I was diagnosed with a bladder infection and given antibiotics. They also told us to have our family doctor test to make sure the infection had cleared up, it had not.

    At 15 years of age I had surgery to repair reflux in my right ureter. This surgery is usually done at age 4 or 5 but, mine was undiagnosed until the age of 14, as were most of the infections. We were told that the left side had repaired itself. I had yearly check ups at Sick Childrens’ Hospital until the age of 18.

    At 19 we were told I had chronic pyelonephritis in my kidneys due to the infections that had gone untreated for years. I was put on long term sulpha antibiotics. My Urologist tried taking me off of them several times but, I always ended up with a bad infection in my kidneys. I did manage to get off of them around the age of 24.

    When I was 25 I got married and we wanted children. It took me 3 years and 1 miscarriage to conceive.
    I did not have any problems during my 2 pregnancies. In fact most of the time I had never felt better.

    When my second son was about 2 years old I had to have my gallbladder removed. It was black and stuck to my stomach.

    Then intercourse became very painful and I was diagnosed with Endometriosis. I was 34 at this time. My OB/GYN tried everything to save my uterus but to no avail. After 2 years of pain and suffering he removed my uterus and my right ovary. During this time I also developed IBS. I used to have a problem with constipation and now I had diarrhoea every day.

    Several times over the years I had gone to emergency with what I thought was a bladder infection. Most of the time no bacteria was found in my urine. They would say all I had was a ”slightly elevated white blood count.” Depending on the doctor I was given antibiotics or treated like a drug seeker.

    When I was about 38 I started to have a problem with frequent voiding and had to get out of bed several times during the night to void. I now had a different family doctor because mine had retired. I had my GP send me to a Urologist that was recommended to me by several other patients of his. My old Urologist had retired by this time and the new one was closer to home. This Urologist tried medications to resolve this issue but they did not help. Eventually he did a scope under twilight sedation and found scar tissue blocking my urethra which, he had to clear. He woke me after surgery and asked me did I know that my bladder was extremely large. I told him I had never been told that but, when I had a voiding cystogram at 14 they were commenting on how much saline my bladder could hold.

    When I was 49 I started to have trouble with my bladder again. Frequent urination, pressure, burning and pain during sex. I went to my doctors office because they do not answer the phone, to make an appointment. The secretary told me I had to wait 2 months to see my GP and that I should go to emergency. I told her to also make me an appointment with my Urologist because I hadn’t seen him since he cleared my bladder.

    I went to emergency and the doctor gave me antibiotics after listening to my history even though all they could see was a “slightly elevated white blood count.” He only gave me 1 weeks worth so, a week later I was back again. This time the on-call doctor decided I was a drug seeker because all he saw was a “slightly elevated white blood count”. He told me the first doctor should not have given me antibiotics or at least not the ones that I told him I needed. I should mentioned that I am very resistant to antibiotics and giving me a broad base antibiotic is like giving an aspirin for a migraine. This doctor decided to give me a shot of morphine for the pain and told me to go home. The nurse said that he did not agree with the doctor that I was a drug seeker and I should come back later when a different doctor would see me. Well I was back the next day because the pain was still there. I saw the first doctor that tried to help me and he said he could only give me a broad based antibiotic because of the other doctor. He told me I should be seeing my family doctor. I told him I was in 2 months, he told me to get a new doctor. I live in a small town in Canada and we have a doctor shortage. I had to go back to emergency again and this time they left me in the waiting room for 21/2 hours while they treated poison ivy and the sniffles. I finally told me husband to take me home because I couldn’t stand the pain sitting in that waiting room. I believe the doctor that decided I was a drug seeker flagged my file and that is why they left me sitting in the waiting room.
    The next day my husband came home and I was laying on the couch with a hot water bottle in the fetal position bawling my eyes out from the pain. My husband went to my doctors office and demanded to see the doctor. The doctor said to my husband “Oh maybe she has cystitis.” He gave my husband a perscription for antibiotics to last until I saw my Urologist.

    My Urologist did a scope and told me I have Interstitial Cystitis. He also did a CT scan of my kidneys and told me that the right kidney was very small and very damaged and would probably have to come out. After a Renal Scan he said it was still doing 25% of the work and I could keep it for now. I do remember hearing Cystitis before but, that was my old GP, god how I miss him, but my files were not transferred to my new GP. My old GP used to say all we see is a “slightly elevated white blood count” but with you, that means infection. I told my Urologist that they would not help me at emergency and he said he would be sure to put a note in my file.

    So I start installations once a month for 6 months. It helped at first but the symptoms started to come back. I also had been having right flank pain. I tried to see my family doctor but again it was 2 months. My Urologist said he would see me anytime because I had told him about the wait time to see my GP. My Urologist is an hours car ride away not the greatest thing to do during a flare. I was sick for a month before my GP finally saw me but only because I made a complaint. When he saw me he put me on Elavil 25mg, an acid reducer for my hiatus hernia and to help with the burning in my bladder and Demerol 50mg. I haven’t needed the Demerol since I have the other medications. These medications are helping. His parting gift to me was to suggest that I am a drug seeker and he will no longer be my doctor. He sarcasticly said I can go to emergency now because "now you have a diagnosis Susan." Not that it matters much, he just leaves me to suffer anyway. He cautioned my husband “not to use any strong arm tactic this time.” I guess my husband trying to get me the help I needed seemed like a strong arm tactic to him.

    I also have thoracic outlet from a work place injury that he would not help me get disability for. I had a difficult time even getting him to send me to someone who might know what was going on with my right arm and shoulder. I have an extra vertebrae, scoliosis and degenerative disc disease in my back. I have been complaining of lower back pain for a number of years. My GP did x-rays a couple of times and mocked me when I suggested it might have something to do with my kidneys or bladder. When I had Endometrosis I had a lot of problems with my back and sciatica. I know that anytime I have pelvic inflammation I have a lot of problems with my back. He would give me pain killers and never investigated further. I have a Chiropractor that helps me as much as he can and has told me he is amazed at how well I am doing in spite of everything.

    I am very frustrated by this drug seeker garbage. Since I live in a small town it will probably make it even more difficult to find another doctor. But hey, I’ve basically been on my own to deal with my issues so, I probably wont notice much difference not having a GP. I do have a good Urologist and I guess he will have to do for now. I can't understand why doctors won't help someone who has a history of kidney and bladder problems. I have rarely gone to emergency because they usually wont help me anyway and I get tired of begging. I have ignored a lot of pain over the years because I did not want to be labelled a drug seeker but it happened anyway. I had been waking up some mornings with excrutiating pain in my right flank. My Urologist seemed surprised that I had ignored this sign for several years.

    The good news is, I have had IC for a long time and it does not always bother me. This is not a life sentence for me. I refuse to give in. I will have a life with or without doctors. I will not let this doctor dictate how I feel about myself and I refuse to allow him to stress me and make me sicker. He is just another jerk that doesn't understand. That makes him toxic to me. Good Riddance to you, jerk.

  • #2
    I'm glad you at least have a urologist who is helping you. You might want to ask him for a suggestion about a new primary care physician. Sometimes that's a good way to find someone good.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I am so sorry that you had to put up with such ignorance, there are good doctors and bad doctors. My first Uro was a monster he would say that most of my pain was in my head and treated me like I was a drug seeker. He would not give me anything for my severe pain, I was at his mercy for about 3 months. I finally said that's it I have got to find another Uro and I did. Some doctors need to go back to school or better yet church and learn to be caring and understanding of there patients. I wish you the very best and pray for a cure soon, keep in touch and let us know how you are doing.
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      • #4
        Thanks Donna and Linda for the support. In Ontario, Canada we have a government program called Health Connect. I first had to notify them that I wanted to unregister with my Doctor. I am now waiting for the letter that says I am unregistered. Once I get the letter Health Connect has a nurse do an interview about your health needs. My hope is that they will put me on the high need list. If they dont it may take me a couple of years to get a Doctor. I know people who have had Nurse Practitioners as there primary care giver for 2 years before they found a GP. I know that my ex GP told my Urologist that he was releasing me so, if he can help he probably will. My ex GP made it clear to me that none of the 7 other Doctors in his Family Health Care Team would take me as a patient either. That is almost half of the Doctors in town. I should be registering with Health Connect this week and hopefully they can help. I will let you know what happens.

        THANKS again for the support. I have faith it will work out better for me in the end. It is hard to take when you are don't feel well and you get called names and know that you don't have the support or help you need from your primary health provider. It would be nice to have a GP that cared and was trying to help me keep my good kidney functioning. The IC is bad enough but Dialysis is not something I look forward to.

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