Tweet
My IC story!
Hi everyone!
My name is Kayla, i'm 18 and I live in sunny England
I have just recently been 'possibly' diagnosed with ic after a major battle between myself and various GP's/Urologists. As a child i had to endure many urinary tract infections that made me vomit and occasionally wound me up in hospital overnight. I was given a kidney scan age 10 and thank goodness they found no lasting damage! It seemed to calm down after that however i never forgot the pain of a water infection!
Last November i started to get the pain again however it was not just when i urinated but i also had severe stomach pain. I took a sample to the doctors and saw my GP (after hours of ringing the phone they disconnect because the receptionists are so ignorant and can't be bothered to care). He dipped my water and found 'not a thing'. He told me to go away with some antibiotics just in case but told me the pain was due to my egg passing down my fallopian tube (i do get that pain but it most certainly wasn't that!).
i returned to him every few days as the pain got increasingly worse however he still dismissed me, even suggesting the pain was in my head as i was 'afraid' and 'paranoid' of catching another UTI! the cheek!
a week later a lovely female doctor at the surgery called me to go and have a chat with her about my sample. She told me that a great deal of blood had been found and it was a wonder the other GP hadn't picked this up
i then had to send off many more samples for testing (i'm quite the expert at peeing into the little bottle now!
) and the blood remained constantly high. She decided it would be best for me to visit a urologist at the hospital which totally terrified me but i wanted it sorting! the urologist turned out to be the same guy who treated my dad for prostate trouble. I heard many amazing reports about how lovely he was so this put me at ease. However when I eventually got to see him he was incredibly rude! He accused me of having an STI, sleeping around and being pregnant and afraid to tell my parents! it was only when he did the internal that he realised i was actually a virgin and not at all pregnant! He then started to take me more seriously and arranged for a trip to day surgery for a cystoscopy with hydro-distention under general anesthetic.
Needless to say I was horrified to go but couldn't wait to be properly diagnosed! months and months passed by with no word of when my appointment was and I even had to go back to the GP to ask for help. She phoned them and couldn't get an answer. Eventually she phoned me back and they gave me my pre-op and admission dates which were a month away. apparently my letter had been lost and not sent. yeah right
I had my cystoscopy and I was under a lot longer than anyone expected. when i came round he came to see me to see how I was doing (I must mention that he, the anesthetist and the staff were wonderful with me) and he told me no wonder i had been in pain as my bladder was very small and incredibly inflamed.
Ive just been back for my check-up and he believes it to be ic however i need to do some early morning water samples to rule out the tiny possibility i have TB in my bladder! didn't know you could get that but never mind!
The battle continues! i'm on no medication, pretty much in constant pain and about take my a-levels but im DETERMINED ic w'ill not beat me!
thanks for listening to me whinge guys, my mam and dad are sick of it now!
Kayla x
My name is Kayla, i'm 18 and I live in sunny England
I have just recently been 'possibly' diagnosed with ic after a major battle between myself and various GP's/Urologists. As a child i had to endure many urinary tract infections that made me vomit and occasionally wound me up in hospital overnight. I was given a kidney scan age 10 and thank goodness they found no lasting damage! It seemed to calm down after that however i never forgot the pain of a water infection!
Last November i started to get the pain again however it was not just when i urinated but i also had severe stomach pain. I took a sample to the doctors and saw my GP (after hours of ringing the phone they disconnect because the receptionists are so ignorant and can't be bothered to care). He dipped my water and found 'not a thing'. He told me to go away with some antibiotics just in case but told me the pain was due to my egg passing down my fallopian tube (i do get that pain but it most certainly wasn't that!).
i returned to him every few days as the pain got increasingly worse however he still dismissed me, even suggesting the pain was in my head as i was 'afraid' and 'paranoid' of catching another UTI! the cheek!
a week later a lovely female doctor at the surgery called me to go and have a chat with her about my sample. She told me that a great deal of blood had been found and it was a wonder the other GP hadn't picked this up
i then had to send off many more samples for testing (i'm quite the expert at peeing into the little bottle now!
) and the blood remained constantly high. She decided it would be best for me to visit a urologist at the hospital which totally terrified me but i wanted it sorting! the urologist turned out to be the same guy who treated my dad for prostate trouble. I heard many amazing reports about how lovely he was so this put me at ease. However when I eventually got to see him he was incredibly rude! He accused me of having an STI, sleeping around and being pregnant and afraid to tell my parents! it was only when he did the internal that he realised i was actually a virgin and not at all pregnant! He then started to take me more seriously and arranged for a trip to day surgery for a cystoscopy with hydro-distention under general anesthetic.Needless to say I was horrified to go but couldn't wait to be properly diagnosed! months and months passed by with no word of when my appointment was and I even had to go back to the GP to ask for help. She phoned them and couldn't get an answer. Eventually she phoned me back and they gave me my pre-op and admission dates which were a month away. apparently my letter had been lost and not sent. yeah right
I had my cystoscopy and I was under a lot longer than anyone expected. when i came round he came to see me to see how I was doing (I must mention that he, the anesthetist and the staff were wonderful with me
) and he told me no wonder i had been in pain as my bladder was very small and incredibly inflamed. Ive just been back for my check-up and he believes it to be ic however i need to do some early morning water samples to rule out the tiny possibility i have TB in my bladder! didn't know you could get that but never mind!
The battle continues! i'm on no medication, pretty much in constant pain and about take my a-levels but im DETERMINED ic w'ill not beat me!
thanks for listening to me whinge guys, my mam and dad are sick of it now!
Kayla x
I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC. 
Comment