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  • Just diagnosed!

    Hi, I was just diagnosed yesterday and wanted to know are there any other people that have this have a burning pain in their right side that radiates to the lower back??

  • #2

    Pain can seem to come from many places with IC. I actually have a similar pain that you describe. They have worked me up for ovarian problems, kidney issues, and adhesions from the C-sections I had. Nothing showed I think for me it is just the IC.

    It IS important to get this looked into for yourself, though, to rule out all of the above. You need to know for sure.

    Finally, be sure to follow the IC Diet! That is one of the best ways you can help yourself.....

    Sending you welcoming and understanding hugs!!!!!

    Julie B
    Julie Beyer, MA, RDN
    IC Dietitian, Patient Advocate, Speaker, & Author

    Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

    Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

    You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

    ........ ........

    Other IC Diet Resources:

    IC Diet Webinar
    IC Diet Website
    For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
    Free IC Diet Booklet: What Can I Eat?
    Confident Choices IC Diet Blog
    IC Diet Newsletter

    *Let's Connect!*


    • #3
      Thanks Julie,
      The pain seems to be worst when I am sitting or laying on my right side,so I am wondering if it might be a nerve!! My uro said that it might be my colon so I guess I will have that check out,just glad that there is someone else that has that burning.


      • #4
        what treatment plans are you on?
        <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


        • #5

          Right now I am doing the diet and taking hydroxzine,she told my husband that she will put me on a medicine to rebuild the cell in the bladder in a few weeks when i go back to her,I don't know what it is.


          • #6
            Before I started any kind of treatment, I felt like my ovaries wer just rolling and twisting. Everything down there burned and was in pain like I got kicked in the crotch every 5 seconds. Once I started treatment, after several months, those feelings started to go away. My back and neck can also be affected. It's just all part of IC.
            Your Friend,

            Diagnosed: 10/16/09

            Elmiron, 100mg 2x per day
            Imipramine, 10 mg per day
            Diazepam 10 mg for sleep
            Zovia, birth control (ongoing-no periods)
            Hydrocodone, 2 pills a day (at any time of day)


            • #7
              I too burned down there and painful sex!!! Also have have bv twice since Feb.which I had never had.I have neck problems(pinch nerve) and I am on klonopin for that.It also helps with the burning in my side,
              She gave me Tylenol with codeine for pain.I also take a probiotic.
              I feel alittle better today,burning in my back a little. It is so strange but my oldest daughter also has IC since 09.I really do believe that it can run in familys.


              • #8
                Sorry you have IC, but glad you found this wonderful website. It was a lifesaver for me.


                • #9
                  Thank you all for being so nice and helpful,I am glad that I found you all.Thanks to my daughter who sent me here.


                  • #10
                    Originally posted by brenda54 View Post
                    Right now I am doing the diet and taking hydroxzine,she told my husband that she will put me on a medicine to rebuild the cell in the bladder in a few weeks when i go back to her,I don't know what it is.
                    She has not mentioned bladder instills?
                    <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


                    • #11
                      No,to tell you the truth I have not talked to her since the hydro.I am surprised that she or her offfice has not called me to see how I am doing.All I know is what she went and told my husband while I was still out! If I don't hear from them tomorrow I am going to call.I am not sure she is going to be the right uro for me!!


                      • #12
                        Also, tylenol can cause flares. I could never take it.
                        Minds are like parachutes-they ony function when they are open.
                        -Thomas DeWar-

                        ICN Newbie Volunteer

                        *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


                        • #13
                          Great! I just took some,because I started burning real bad,because I haven't had a pyridrum since about 2:00 this morning. I felt ok until about 6 then the burning started!!! I only have 2 pills left. She said that I could be in pain for a few days or weeks!! Should I go to over the counter bladder pain med's when these or gone???


                          • #14
                            Lots of people can take tylenol, so don't worry about that. a person here has good sucess with taking tylenol #3 for pain and she says it works better for her than other stronger meds,

                            You can get OTC AZO but if you are still having significant pain and burning I think you should call your Dr. and discuss it with the Dr.

                            You may have an infection now.

                            Good luck hope you feel better soon. MG
                            My are with you all. May you all find a way to peace and joy in your lives.


                            • #15
                              I take tylenol 3's and they never give me any problems! Hope you feel better! PS. Almond milk helps me alot with burning I no longer have any actually! Only when I flare do I have some... Also switching to an alkalizing water helped me also... having a PH of 7 or higher in water seems to be soothing, as almost all bottled water is actually acidic!

                              28 yrs old,

                              I have little to no problems now with my bladder, unless I am very stressed out, I forget to take Elmiron for a few days, or I eat or drink something that I know is a trigger...(i.e) like eating a tomato or drinking tea.... Took a long time to get here, but it IS possible to feel good again I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC.

                              What Works: Tylenol 3's, Pyridium, Elmiron (Going on 4 years now!) HOT showers!!!

                              Medications/ Vitamins: Elmiron-100mg 4x's daily Tylenol 3's/Advil (flaring) Vitamin D, WILD salmon oil 4x gels in the morning, Women's ONE a DAY multivitamin (the gummy kind doesn't make me flare) and PROBIOTICS!

                              Me in my graduation gown!