going out tonight and I know beer kills me and I hear wine is not the best either but what about an extra dirty martini? I've been flaring and I don't want to pay for it later but would like to unwind. any thoughts?
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I can do a couple of glasses of white wine when I'm not flaring, with some Prelief.
I think being a flare, plus any kind of alcohol is a recipe for disaster. I would DEFINITELY be paying for it later! My favorite way to unwind is to take a warm bath. And yes, I know that doesn't sound as fun as a night of drinking.Symtoms started July 2010.
Severe pelvic floor pain only.
2 time PT graduate!
In medical remission since August 2011; able to eat and drink anything I want currently.
IC meds:
200 mg Elmiron in the morning
100 mg Elmiron @ night
Macrobid after intercourse
03/11
07/11
01/12
If at first you don't succeed: 07/26/2013!
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I get Prelief at Walgreens. I would imagine CVS or any similar drugstore would carry it. It is in the antacid section. I take it before eating or drinking things that I have tested to be only minor problems for me, or foods that may have ingredients I don't know about. I can drink a few glasses of wine, have some mayo on a sandwich, etc... I haven't ever tested it on pasta sauce or soda, LOL... the two things I miss the most.
When I flare, the length depends on what its cause is... a food or drink flare generally lasts less than 4-6 hours for me. The last longer flare I had lasted a week, and was due to not realizing my seasonal allergy meds needed to be upped. When I doubled my dose, the flare passed. I have been well-controlled by meds and the diet for 8 months, however and had been on a very strict diet for 4 months before I even thought about trying anything other than the Usually Okay column! I also have very mild IC symptoms in the first place, and so should NOT be used as a barometer for trying new things that may bring you pain!
Edited to add- I just went through and read a few of your other posts. You are still so new to IC. I would strongly recommend giving your bladder a rest for a while and trying to limit yourself to the foods and drinks that do not bring discomfort to most IC'ers. I know it is very hard in the beginning- especially when there are so many things about this disease to stress out over. I loved drinking wine in the evenings pre-IC, and found it a great way to relax. I was terrified the first time I tried it after 6 or so MONTHS of being on the diet. This early stage of fear and pain usually gets much, much better, and causing yourself more pain by drinking may only prolong that happening.Last edited by meResque; 06-18-2011, 11:09 AM.Symtoms started July 2010.
Severe pelvic floor pain only.
2 time PT graduate!
In medical remission since August 2011; able to eat and drink anything I want currently.
IC meds:
200 mg Elmiron in the morning
100 mg Elmiron @ night
Macrobid after intercourse
03/11
07/11
01/12
If at first you don't succeed: 07/26/2013!
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Yes I'm new to here. Not sure if I have been diagnosed prior. but this last spout has gotten me good. Sent me to ER with severe bladder pain. My follow up with my urologist is next week. I havent seen him in two years due to feeling better and other med prob came about. My obgyn and rheumie is convinced of IC since it's pretty much related to my autoimmune disease.
I've had UTI problems for over 15yrs which grew nothing every time. The pain was unbelievable. Didn't know how I was going to make it. then I got Ankloysing spondylitis which is annother pain disease. Yea for me mor pain.
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Hey just a heads up for you & any other readers out there. Many IC meds do not go well with alcohol. Be sure you check your prescription information sheets for interactions before you drink alcohol.
I also agree with meResque about not drinking until your treatment plan is steady and your pain level is managed. Why risk provoking it? Some patients find their food/drink flares are over quickly. I've had several that went on for days - over small things - like a tortilla with preservative in it, 1 small piece of banana (not even a half banana! tiny piece). I'd make your experiments with diet to be small ones and trying out foods that improve your overall nutrition. Alcohol doesn't really do anything for you nutritionally.
Just a few thoughts,Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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mojitos,rum,white wine..dont flare me.Newly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
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***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
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Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
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I can usually have a couple of vodka and soda waters if I am not flaring. It's strange- my friends spend the night weeing more than me! my pee feels abit stingy the next day but usually if I drink loads of water and chamomile tea- I get away wit it!
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When I was first dx'd I drank vodka martini's with lots of prelief.Minds are like parachutes-they ony function when they are open.
-Thomas DeWar-
ICN NewbieVolunteer
*ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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I know what you mean about the Earl Grey tea. It's a killer. I don't drink tea at all anymore except for herbal chamomile and mint. I so miss my morning black tea and don't think I should be starting the day with a pear vodka martini (lol), so I'm out of luck.
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Kadi does have a point about alcohol and IC meds. I know I have to be careful drinking with the Elavil; it really does magnify its effects.
So, when I do enjoy alcohol, it's generally just one. Plain vodka - Ketel One on the rocks, no fruit please - gives me absolutely no problems at all. I can drink sweeter white wines like rieslings and I've had a few Corona lights here and there.
When I'm not feeling good ... no alcohol, no low-acid coffee, no "cheats." I go back to the basics. But it's nice to know that when I'm feeling better again, I can probably enjoy a few things that I like. It makes those times when I go without not seem so bad.Lori
40 y.o. mom, wife and marketing manager
"Il faut manger pour vivre, et non pas vivre pour manger." -- Moliere ("One should eat to live, not live to eat.")
IC symptoms began Feb 2010; diagnosed Mar 2010
Treatments:
Oral
Elmiron 3x day; Elavil 25 mg/day; Prelief (when I remember!); Benadryl and Prosed DS as needed for flares
Other
Acupuncture 2x/month; yoga; IC Diet; meditation and breathing exercises for stress; heating pad for flares
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