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Urologist says that I just have to live with this ! What do I do now ?

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  • Tuckersmom
    replied
    Try using Prelief while you look for another URO. I've had IC for 20 years now. A recent UTI left me in a bad flare. I had some Prelief in my cabinet, but hadn't used it in a very long time. In desperation I decided to take it before I ate or drank anything. Within 3 days, I was over the flare completely. Their are some amazing reviews of this product on their web site, many of them from ICers. I'm going to continue to take Prelief on a daily basis. Here's a link to the reviews:

    http://www.akpharma.com/prelief/testimonials.html

    Leave a comment:


  • Jinny Jean
    replied
    Hope you feel better soon!!!

    Leave a comment:


  • Locker715
    replied
    Sorry you are not feeling so well :-(. I went through this, too. My first urologist said it was PFD and attributed the trace amount of microscopic blood in my urine to me straining to get my urine stream started. While I do believe that I have pelvic floor spasms from time to time, I didn't think that my straining was causing the microscopic hematuria, and all of my other symptoms. I went to my OBGYN to have her check me out, and she set me up with a different urologist, who did a consultation with me last week, and then had me come back a few days ago on Monday for a KCl instillation test. He diagnosed me with early IC and has me taking Elmiron. So, I DO agree with everyone on here: I hope you can find a different urologist, because it will all be worth it to find out what's REALLY going on inside of you. Good luck to you and I hope you feel better soon!

    Leave a comment:


  • VickiB
    replied
    I have to say find another Uro as well. I went through quite a few doctors before I found one who actually was helpful/ IC knowledgeable.

    My symptoms have always fluctuated between periods of being near normal and periods of complete misery. I now suspect this was mainly the result of triggers that were unknown to me at the time.

    I'm not sure where you are and I know that one person's 'in the area' varies quite a bit from the next person's. (Where I am in the west, being within 200 miles is considered within the area ) But if you do have to travel, -and they really help you, it would be worth it. Once better, you probably won't be having to see them that often anymore.

    I'm sorry you're going through this!
    Vicki

    Leave a comment:


  • Linda May
    replied
    I agree with Donna find another Uro, even if you have to travel some.

    It's not right for doctors to ignore you they took an oath to help people.

    Some doctors are in it for the money only, and that is so wrong.

    I hope you find a good Uro soon and he can provide you with answers and treatment options.

    Leave a comment:


  • nottoc4
    replied
    Have you talked to your GYN about this? Mine was very knowledgable and
    and he is the one that treats me. My Urologist was an A..H....He knew nothing about what was wrong with me and just kept giving me prescriptions for OAB meds,none of them worked for me because I didn't have OAB.
    My GYN is UROGYN.

    Leave a comment:


  • kadi
    replied
    My IC is continuous - it never goes away - just sometimes is a little better, sometimes worse. My mom has a milder case - doesn't have high symptoms all the time & has a more relaxed diet than I do, but she still has it. My grandmother had episodes of IC throughout her life, didn't know what it was called, but "discovered" if she ate bland foods during those times the pain & frequency went away.

    I agree with the above messages, I'd look for a new urologist. And don't worry too much about distance - if you get a good one who knows how to treat what you have, you don't need to go very often.

    Leave a comment:


  • earthlady
    replied
    The first uro I saw said the same thing to me. He didn't believe it was IC because the symptoms would come and go. Since then I have seen a few more doctors- all of whom stated it was very common for symptoms of IC to come and go. I ended up having both pelvic floor spasms and IC and was treated for both, so seeing another uro is probably a good idea even if you need to travel a ways.

    Leave a comment:


  • ICNDonna
    replied
    You may have to travel a little, but I suggest you see a different urologist --- your GP may be able to help with a suggestion.

    Warm hugs,
    Donna

    Leave a comment:


  • Urologist says that I just have to live with this ! What do I do now ?

    Hi everyone. I had what I believed to be a Flare that lasted a month starting in March. My G.P. gave me Tramadol for the pain and started me on Oxybutin. I had some incontinence that the Oxy helped. I saw a Urologist . He doesn't believe that IC exist and told me that I have Pelvic Floor Dysfuntion. I don't really fit the symotoms of that disease. By the time I could get in to see another Urologist, the symptoms had all stopped. He said that I don't have IC because it never goes away. I seem to have all of the IC symtoms that occur during a Flare. This has happend 2 other times in the past 15 years and I am starting to have symptoms again. I have no other Urologists to turn to in my area. I actually see my G.P. tomorrow, Friday , July 1st. I am going to ask her to treat this the best she can. Right now my symptoms are a constant urge to urinate which worsens as my bladder fills. If I drink a bottle of water, within 15 minutes I am going to the bathroom every 10 minutes until I guess my bladder is fairly empty. I also just feel like I have to go all the time. No incontinence and am on 10 Mg Oxybutin one time daily. With the last Flare, this is how it all started and it progressed to severe discomfort and occassional sharp pains in my bladder. Any suggestions on what this may be and what medications would help me ? I just want to sit and cry because no one wants to help me.
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