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  • #1

    Decreased kidney function and IC

    Hello. I'm 42 and haven't been diagnosed with IC, but have all the symptoms. My dr keeps putting me on antibiotics, but doesn't help. I had many UTI's in my early 20's and I think the urologist actually gave me a treatment for IC at that time. He filled my bladder with a fluid, had me hold it, the release it. It was 20 years ago, so I really couldn't remember what his diagnosis was. Can IC go away for years, then reappear?

    Anyway I have had pain (sometimes bad, sometimes mild) for six months. I"ve mentioned it to my dr and he doesn't address it. He's focused on discussing lab results for the kidney issues. While it's true that I have been very anxious after the diagnosis, and IC symproms have gotten to an all-time worse, I don't think I'm imagining it. The night before I started my period, I wanted to be knocked out - the pain was so bad.

    I'm a little nervous about taking medication for IC now that I have the decreased kidney function. Sometimes the pain is so bad, I would take anything, but other times I think I can handle it. Is there anyone else out there with high creatinine (mine ranges from 1.1 - 1.2) or kidney troubles? Just wondering - I could really use some good news about things right now.

    Much thanks for any replies.
    Shari
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    • #2
      IC can go into remission, sometimes for years. There are medications you can take with decreased kidney function --- I know because my husband has it. You may want to see a nephrologist to have your kidneys checked.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          Thank you, Donna. I see the nephrologist next week. I hope you're feeling well. Is your husband doing ok with his kidney disease? I'm so hoping that the nephrologist will say that mine can be controlled. The IC pain was 10 times worse when I was first told about the KD. I think anxiety makes the pain much worse. My creatinine was 1.0 in 1997 and is only 1.16 now. Even though I'm older I feel I could have more muscle now than then.

          Healing thoughts for everyone.
          Sharil

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            • #4
              Right now my husband is out in his wood shop building me a new spinning wheel. He's doing well. He sees his nephrologist every three months and so far isn't even close to needing dialysis.

              Warm hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

                Comment

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