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Just Diagnosed, need so much info!

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  • Just Diagnosed, need so much info!

    Hi Everyone,
    I have just been diagnosed with IC, I aslo have chronic Pyclonephritis, for 23years. This site has already helped me to understand my new life. With Chronic Pyclonephritis I am in some level of pain every day and now IC. Left kindey is down to 28%. Do you know how the IC meds work with low kindey fuctions?
    After reading some posts I 've learned some Dr's do not support IC, Do they think it's just in our heads? I guess I was lucky by already going to a Urologist. I was being treated for UTI linked to my CP. The UTI would not go away for maybe the last eight months. IC was something I nor my urologist was expecting to find. I have used almost five weeks of vacation time this year due to the pain. I'm not having any relief from the diet. I'm 54 I think I'm very near the point of not being able to work and I'm so afaid. Do anyone know the social security office views on IC? Do you get turned down? I am single and live alone.I just do not know what to do next. Thanks you for sharing any info you have. Best wishes to you.

  • #2
    If you need to apply for Social Security disability, listing the nephritis will help move it along. People do get approved for IC alone, but those with more than one diagnosis seem to be approved quicker.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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