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Hi everyone. I have been reading the posts on this site for a long time but never posted myself. I am having a hard time lately so I thought maybe I'd give it a shot.
I am a 29 year old male living in Alaska. I first started having bladder issues in 2007 after a bad kidney infection. At that timethe problem was confined to frequency and lasted about 2 months. My primary care doc chalked it up to damage from the infection. I had episodes of frequency on and off for the next couple years, but never sought treatment.
The real trouble started last August. I can literally remember the second it began. I was at my desk and realized I had to pee, so I went. However, I still had to pee. My doc thought I had an infection and put me through a couple rounds of antibiotics, which did nothing. Over the next couple of months I had to pee about every 15 minutes.
My primary care sent me to a urologist, who put me on several different overactice bladder mess, but nothing worked. I had an in office cystoscopy and urodynamic testing. Everything was clear. I asked the urologist about ic but he said ic was a very rare disease and it was very unlikely I had it.
Around January my symptoms began to improve and by March I was totally symptom free. I thought I could put the whole terrible episode behind me.
Unfortunately two weeks ago the frequency returned full force, but this time with abdominal pain that got worse as my bladder filled. I went to a different urologist and was prescribed Elmiron. It took 4 pharmacies to find one that had it in stock I only have a two week supply, and I am worried I will not be able to refill it. The urologist also prescribed another overactive bladder med. I am following the diet as well.
I am really struggling with this. I can't handle the thought of going through this again. It took my life away last time. I couldn't hike or bike or go to the gym or do anything I like to do. For the past two weeks even sitting on the couch hurts. Work is hard. How do I cope with this?
I am a 29 year old male living in Alaska. I first started having bladder issues in 2007 after a bad kidney infection. At that timethe problem was confined to frequency and lasted about 2 months. My primary care doc chalked it up to damage from the infection. I had episodes of frequency on and off for the next couple years, but never sought treatment.
The real trouble started last August. I can literally remember the second it began. I was at my desk and realized I had to pee, so I went. However, I still had to pee. My doc thought I had an infection and put me through a couple rounds of antibiotics, which did nothing. Over the next couple of months I had to pee about every 15 minutes.
My primary care sent me to a urologist, who put me on several different overactice bladder mess, but nothing worked. I had an in office cystoscopy and urodynamic testing. Everything was clear. I asked the urologist about ic but he said ic was a very rare disease and it was very unlikely I had it.
Around January my symptoms began to improve and by March I was totally symptom free. I thought I could put the whole terrible episode behind me.
Unfortunately two weeks ago the frequency returned full force, but this time with abdominal pain that got worse as my bladder filled. I went to a different urologist and was prescribed Elmiron. It took 4 pharmacies to find one that had it in stock I only have a two week supply, and I am worried I will not be able to refill it. The urologist also prescribed another overactive bladder med. I am following the diet as well.
I am really struggling with this. I can't handle the thought of going through this again. It took my life away last time. I couldn't hike or bike or go to the gym or do anything I like to do. For the past two weeks even sitting on the couch hurts. Work is hard. How do I cope with this?
Glad you have been researching this site. It is the best. Hopefully some of the guys will chime in & give you advice. Obviously your dr. ruled out a bladder infection. And you have started the diet which will help calm your bladder down. I am just going to suggest that you check out the treatment plans on here too. You can copy the info & take it to your dr. Many of us have had to see several urologists before one "clicked" for us. There are drugs that can supplement the elmiron like hydroxyzine, elavil, bladder instills,etc. Physical therapy for the pelvic floor has also helped with IC pain, frequency, & urgency.
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