Tweet
Hi everyone. I have been reading the posts on this site for a long time but never posted myself. I am having a hard time lately so I thought maybe I'd give it a shot.
I am a 29 year old living in Alaska. I first started having bladder issues in 2007 after a bad kidney infection. At that timethe problem was confined to frequency and lasted about 2 months. My primary care doc chalked it up to damage from the infection. I had episodes of frequency on and off for the next couple years, but never sought treatment.
The real trouble started last August. I can literally remember the second it began. I was at my desk and realized I had to pee, so I went. However, I still had to pee. My doc thought I had an infection and put me through a couple rounds of antibiotics, which did nothing. Over the next couple of months I had to pee about every 15 minutes.
My primary care sent me to a urologist, who put me on several different overactice bladder mess, but nothing worked. I had an in office cystoscopy and urodynamic testing. Everything was clear. I asked the urologist about ic but he said ic was a very rare disease and it was very unlikely I had it.
Around January my symptoms began to improve and by March I was totally symptom free. I thought I could put the whole terrible episode behind me.
Unfortunately two weeks ago the frequency returned full force, but this time with abdominal pain that got worse as my bladder filled. I went to a different urologist and was prescribed Elmiron. It took 4 pharmacies to find one that had it in stock I only have a two week supply, and I am worried I will not be able to refill it. The urologist also prescribed another overactive bladder med. I am following the diet as well.
I am really struggling with this. I can't handle the thought of going through this again. It took my life away last time. I couldn't hike or bike or go to the gym or do anything I like to do. For the past two weeks even sitting on the couch hurts. Work is hard. How do I cope with this?
I am a 29 year old living in Alaska. I first started having bladder issues in 2007 after a bad kidney infection. At that timethe problem was confined to frequency and lasted about 2 months. My primary care doc chalked it up to damage from the infection. I had episodes of frequency on and off for the next couple years, but never sought treatment.
The real trouble started last August. I can literally remember the second it began. I was at my desk and realized I had to pee, so I went. However, I still had to pee. My doc thought I had an infection and put me through a couple rounds of antibiotics, which did nothing. Over the next couple of months I had to pee about every 15 minutes.
My primary care sent me to a urologist, who put me on several different overactice bladder mess, but nothing worked. I had an in office cystoscopy and urodynamic testing. Everything was clear. I asked the urologist about ic but he said ic was a very rare disease and it was very unlikely I had it.
Around January my symptoms began to improve and by March I was totally symptom free. I thought I could put the whole terrible episode behind me.
Unfortunately two weeks ago the frequency returned full force, but this time with abdominal pain that got worse as my bladder filled. I went to a different urologist and was prescribed Elmiron. It took 4 pharmacies to find one that had it in stock I only have a two week supply, and I am worried I will not be able to refill it. The urologist also prescribed another overactive bladder med. I am following the diet as well.
I am really struggling with this. I can't handle the thought of going through this again. It took my life away last time. I couldn't hike or bike or go to the gym or do anything I like to do. For the past two weeks even sitting on the couch hurts. Work is hard. How do I cope with this?
I've found answers...so can you...keep the hope.
to the IC Network. I know you'll find a lot of support and information here.
Comment