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  • Lynn7
    replied
    Thanks

    Thank you I already am finding a lot of useful info and personal experiences. I don't know anyone personally who has IC and reading other people's experience (while can be upsetting) helps.

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  • ICNDonna
    replied
    to the IC Network. I know you'll find a lot of information and support here.

    Warm hugs,
    Donna

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  • leelee88
    replied
    Hello and Welcome..

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  • Lynn7
    started a topic Hello

    Hello

    Hello everybody!
    I was diagnosed with IC/ PBS last year after a cystoscopy. Had first cystoscopy in 2003 which showed nothing unusual. Had what I initially thought were repeated UTIs for the past 8 years. There were UTIs actually, maybe that is what made it difficult to diagnose. I think bad UTIs is what contributed to the IC. I also get kidney stones. Before 2002 I never had any Urinary problems at all ever even as a kid. My bladder is about 250ml max I was told it's smaller but not too bad. I hope it doesn't get any smaller. I don't have any ulcers that they saw but I did and do have persistent pain in some areas if my bladder more that other areas. For years I did not even know where my chronic pelvic pain is coming from as a Gp I used to go to just written it off as soft tissue damage, he tried to help, sent me to physio. A gynecologist sent me to a psychologist actually saying the pain is psychologically based. I didn't go to either psychologist or the physio as I knew it wasn't psychological and was too sore to go to physiotherapist. It took a while to diagnose like a lot of people here.. After the diagnosis I was tried on antihistamines for 6 months which had no results. Now I just take panadeine (paracetamol with codeine) or ibuprofen.
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