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  • Toto
    replied
    I am glad you are considering a new doctor. I went through the same thing as you recently and my doctor hurried me out of his office after giving me this site address to look at. When I read your post I was angry to hear the doctor did that to you. Why is it that doctor's will spend one minute telling a patient about a serious diagnosis such as IC and tell them to go on the internet? This really stumps me. Though...I have to say...this site has been a HUGE BLESSING to me in many ways. So, I am grateful for my doctor's advice to come to this site. This is a very difficult condition to live with!

    I recommend you read through this site as much as you can. Posts from others, diet tips, etc. are invaluable here.

    I'm wondering if your doctor at least recommended some meds or other options for you.

    Leave a comment:


  • AlaskaGirl
    replied
    icky feeling in the bladder

    I was diagnosed with ic/pbs june 28 2011 and i have to take puridium all day because if i dont my bladder gets a uncomfortable feeling besides the pain it makes me feel achy and gross it gets to a point where i hold myself cause its a pressure feeling i dont know how to explain it i just feel gross and it also feels like something is in there moving around does anyone feel like this i am currently taking
    puridium- works
    Tramadol- causing me worse headaches not taking my pain away
    Elmiron- causing me headaches

    Leave a comment:


  • flowerangela
    replied
    my advice for living in the south with this is move to a city with excellent hospitals and doctors if u can such as atlanta,raleigh,knoxville,nashville,orlando,etc.teaching hospitals are usually the best and up to date on ic and bigger cities have ic support groups as well. im considering moving to raleigh nc for my ic for the duke university hospital there.

    Leave a comment:


  • passion4life
    replied
    The Fantastic Journey

    I totally agree with Eyeliner 128. IC can be a cunning disease producing feelings of depression and helplessness. Be encouraged, we do learn to live with IC and engage in productive, happy lives. My journey lead me to this site. When I first arrived, I was very frustrated and thought things would never get better. Over time I located a caring IC doctor and found the encouragement and support of this fellowship.

    I make it sound like an overnight adventure but it has truly been a journey. I am so sorry for why you had to come but so glad you found this place .


    Have the best day you possibly can.

    Leave a comment:


  • eyeliner128
    replied
    IC is a learning process.

    Having IC is a learning process - I've been diagnosed for 7 years (suffering for 18) and am still struggling to figure out the rights and wrongs, the do's and don'ts. Did your diagnosing physician prescribe you anything? I would be shocked if not. You should start Elmiron right away to start rebuilding the GAG layer of your bladder (this is an immense help to many within 6 months) and also consider with your doctor other methods of treatment such as a low dose antidepressant for nerve pain, an antispasmodic for bladder spasms an antihistamine for the allergic factor of IC. A wonderful and renown urologist is in Greensboro, NC - Dr. Evans. He specializes in IC and I can personally say he is worth the trip. He is knowledgeable, up to date and caring. I'm sure you can find some of his interviews online somewhere concerning IC treatments.

    Good luck and while it will be a hard road ahead, don't ever let IC control you - you are more than this illness and have a wonderful life ahead and much to offer! I consider myself somewhat of an IC veteran so if you ever need some advice feel free to email at [email protected]


    Molly

    Leave a comment:


  • Linda May
    replied
    Donna gave you good links I wish you the best.

    Leave a comment:


  • ICNDonna
    replied
    If you go to http://www.ic-network.com/md/listing..._Carolina.html you may find a physician in your area, who has been recommended by other IC patients.

    Donna

    Leave a comment:


  • laundryqueen
    started a topic Just diagnosed

    Just diagnosed

    HI! I was just diagnosed with IC this week after struggling off and on for 2 years with mostly unbearable frequency. Unfortunately, all the dr. told me was to go home and research on the internet and gave me very little guidance.
    Any words of wisdom?

    Also, any one know of any good dr.'s in the South Carolina (even Atlanta or Charlotte area)? I feel like I need a dr. who will give me more than just a few minutes of his time.

    I tried AZO and it made things worse. Just don't know where to go from here.
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