Tweet
Hello all,
I am very thankful for this site to help with IC. When I think back at the diagnosis, I thought I couldn't get through it. I read everything I could-can't rely on Dr.'s for everything. Elmiron & Detrol LA helped-watching diet, although I can't say that I get flare ups from bad IC foods, so I think the meds are helping. I have lowered my dosage of Elmiron to once a day and now use Toviaz (insurance doesn't cover Detrol now) if my bladders gets shakey. Stress agitates my bladder. I also think that my IC has calmed down for a new problem arose and is taking over-Fibromyalgia (2 years) and today Lichen. I am continually reading of how to help myself-Dr'.s basically have given up and I survive on pain meds, but still count my blessings that I can do my basic life needs and not much more.Still very hard to face after being totally active w/no health problems (I'm 51). I hope/pray that you all have a better day that gives you the strength to research all you can. Taking it 1 hour at a time can ease things. When I look at a big picture it is overwhelming.
I am very thankful for this site to help with IC. When I think back at the diagnosis, I thought I couldn't get through it. I read everything I could-can't rely on Dr.'s for everything. Elmiron & Detrol LA helped-watching diet, although I can't say that I get flare ups from bad IC foods, so I think the meds are helping. I have lowered my dosage of Elmiron to once a day and now use Toviaz (insurance doesn't cover Detrol now) if my bladders gets shakey. Stress agitates my bladder. I also think that my IC has calmed down for a new problem arose and is taking over-Fibromyalgia (2 years) and today Lichen. I am continually reading of how to help myself-Dr'.s basically have given up and I survive on pain meds, but still count my blessings that I can do my basic life needs and not much more.Still very hard to face after being totally active w/no health problems (I'm 51). I hope/pray that you all have a better day that gives you the strength to research all you can. Taking it 1 hour at a time can ease things. When I look at a big picture it is overwhelming.
Comment