Tweet
New Here & My Story
Hi I am new here from New Orleans. Although I am not new to IC. I am 38 years old and have been diagnosed and treated for IC for 11 years. Although as most patients my problems started as a teenager with Endometriosis. After multiple laser laps for the endometriosis and finally a hysterectomy at the age of 29. My abdominal pain and problems persisted.
I owe a co-worker for suggesting that I go to her urologist. One day we were talking at work and I told her about the constant abdominal pain, frequent trips to urinate, pressure, burning, treated for a UTI. We all know the drill. As soon as I walked in gave my Urologist my history and symptoms she was pretty sure that I indeed had IC. After a cystohydrodistention it was confirmed and at that point it was sever with Hunner's ulcers.
Started Elmiron, DMSO instillations, and all the other meds. Fast forward a few years and I had the interstim implanted.
Now I am up to the EMPI therapy as needed, vaginal suppositories (baclofen, lidocaine, Valium), Heparin instillations at home.
Last year I had a cystohydrodistention because of consistent excessive blood in my urine with each visit. At that time she found a bladder polp and removed it. This threw my IC into overdrive, that caused not only microscopic blood but large visible amounts. Where sometimes I thought I was hemorrhaging! So three weeks later back to the OR for Kenalog injections into the bladder.
I know my story is not that much differnt from many here. For so long I just kept everything to myself because those around me have gotten tired of hearing I don't feel well. The other day in my urologist office I saw some articles from ICN and I decided to come back to the website and check it out. I had when I was first diagnosed.
Anyway, thanks for reading. I look forward to posting and reading about people just like me.
I owe a co-worker for suggesting that I go to her urologist. One day we were talking at work and I told her about the constant abdominal pain, frequent trips to urinate, pressure, burning, treated for a UTI. We all know the drill. As soon as I walked in gave my Urologist my history and symptoms she was pretty sure that I indeed had IC. After a cystohydrodistention it was confirmed and at that point it was sever with Hunner's ulcers.
Started Elmiron, DMSO instillations, and all the other meds. Fast forward a few years and I had the interstim implanted.
Now I am up to the EMPI therapy as needed, vaginal suppositories (baclofen, lidocaine, Valium), Heparin instillations at home.
Last year I had a cystohydrodistention because of consistent excessive blood in my urine with each visit. At that time she found a bladder polp and removed it. This threw my IC into overdrive, that caused not only microscopic blood but large visible amounts. Where sometimes I thought I was hemorrhaging! So three weeks later back to the OR for Kenalog injections into the bladder.
I know my story is not that much differnt from many here. For so long I just kept everything to myself because those around me have gotten tired of hearing I don't feel well. The other day in my urologist office I saw some articles from ICN and I decided to come back to the website and check it out. I had when I was first diagnosed.
Anyway, thanks for reading. I look forward to posting and reading about people just like me.
to the IC Network. I know you'll find a lot of information and support here.
Comment