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Discovered I had IC during a TVT procedure

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  • #1

    Discovered I had IC during a TVT procedure

    Hey all I am Mindy. I am 31 y/o and a mama to two boys. On July 14 I had a tvt sling done. During the procedure the Dr. saw scarring and peticia in my bladder. After the surgery I had two bouts of bleeding and was almost scoped again. thankfully the bleeding cleared and I was able to go home. I have since talked to my uro/gyn and he told me aboutr IC. Everything makes so much sense now. I have always since I can remember had frequency and urgancy issues and now I am can actually feel the spasm. I get most uncomfortable just around my period. There are some days I may go 3 time and others I go 16-20. I am going to be trying pelvic PT in hopes to wait out the next surgery for 5-8 yrs. i don't think I'll try meds I am probably going to go straight to the stim procedure....Any advice and support would rock All i keep hearing is how young I am to deal with this....oh and they also discovered my urethra is half the lenghth of average people...fun...
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  • #2
    welcome to the family!
    i also have always had urgency/frequency, and thought it was normal. no such luck! good luck with whatever treatment option you decide to try. this forum has lots of great ideas, and has helped lots of us.

    hugs!


    Live until you die.....don't let IC control your life. Rock your world and as my heroine says, "fiddle dee dee, tomorrow is another day!"

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    • #3
      I'd just like to say to the IC Network family. I know you'll find a wealth of information and support here.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        I would urge you to reconsider trying medications. For many, they are a lifesaver! Interstim is a big procedure, the decision to get it should not be taken lightly. Imagine all the damage that can be done by having shocking wires in your back - if they move, aren't working correctly, etc. you could be in a much worse position than you are now. I am going for an Interstim trial myself, but it's taken me 7 years to get to this point, and for many of these years the meds were helping me.

        You also don't mention the diet, stress relief, and other non-medication therapies that may help. I ask that you give it some more thought, and spend time on here researching and asking questions.

        Best of luck to you!
        Conditions:
        IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

        Medications
        Elmiron 3x day
        Trazadone at bedtime
        Tramadol as needed for pain
        Monthly B-12 injections
        Continuous Birth Control (even though I had a hyst, to control cysts)
        heating pad, hot epsom salt baths, strict IC diet
        Interstim implant 9/11
        Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

        Failed Bladder Treatments
        Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

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        • #5
          I would like to add that you should look at the IC diet and even though you don't want to try medications, the Interstim is considered a last resort treatment when all other treatments have been tried and failed.

          Interstim is an invasive treatment. It has helped people but it has also caused some people a lot more trouble. You really need to research this.

          Please read through the forum and website. There is a lot of very good information here.
          Jolene

          "Life is what happens when you are making other plans" John Lennon

          IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

          Information for Patients can be found here.
          http://www.ic-network.com/patientlinks.html


          Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




          Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

          "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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          • #6
            Welcome


            So sorry for why you had to come but so glad you found a place of wisdom, understanding, and encouragement. This site has truly been a God send lighting my journey.

            I believe you will find what works for you! Don't ever give up. So many have so much to offer.

            Have the best day you possibly can

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