I just found this message board and I am so thankful that I did.
I looked online a couple of years ago when I was first diagnosed, but I never saw the board. I've been getting Jill's emails but I think this board will be much more helpful.
I keep seeing different things people have tried. Are they all things you would need to have a prescription to get?
When I was first diagnosed, I ordered some books online. The one that was the most helpful is called Herbs and the Urinary Tract. I have found Red Clover to be helpful because it works as an anti inflammatory. Right now nothing is working because I have a new boyfriend and any time sex is involved, flare ups are constant.
Can anyone tell me what is helpful that is not extremely expensive? That Elmiron is really expensive and I can't afford it. My urologist is not helpful at all. He just wants me to come in for a UA all the time. It's hard to know when to go in, because the pain is exactly the same whether it's a UTI or a flare up.
I'll keep reading the board, but I'm having trouble getting it around right now. I'll get it figured out. In the mean time, if there is something I can do that is helpful, I would appreciate finding out. The things I see mentioned here I don't know if you buy online, or if they are prescriptions.
Thank you so much, Denise
I looked online a couple of years ago when I was first diagnosed, but I never saw the board. I've been getting Jill's emails but I think this board will be much more helpful.
I keep seeing different things people have tried. Are they all things you would need to have a prescription to get?
When I was first diagnosed, I ordered some books online. The one that was the most helpful is called Herbs and the Urinary Tract. I have found Red Clover to be helpful because it works as an anti inflammatory. Right now nothing is working because I have a new boyfriend and any time sex is involved, flare ups are constant.
Can anyone tell me what is helpful that is not extremely expensive? That Elmiron is really expensive and I can't afford it. My urologist is not helpful at all. He just wants me to come in for a UA all the time. It's hard to know when to go in, because the pain is exactly the same whether it's a UTI or a flare up.
I'll keep reading the board, but I'm having trouble getting it around right now. I'll get it figured out. In the mean time, if there is something I can do that is helpful, I would appreciate finding out. The things I see mentioned here I don't know if you buy online, or if they are prescriptions.
Thank you so much, Denise
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