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Had IC for 7 yrs.

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  • Had IC for 7 yrs.

    Hello,I was dxed with IC 7 yrs ago with pst. I have the opposite problem then you guys I dont pee alot normally I suffer from urinary retention. I had the interstim to help my Urinary retention. Over all my IC has improved in the 7 yrs but I still have flares. Im having one right now Im having the bladder burn.Im currently taking no meds for it because I dont have insurance.I have to get some insurance soon because within the next 3 yrs my interstim will start to fail and I will need it replace. Nice to meet ya'll.

  • #2
    to the IC Network. I'm glad you found us.

    Are you following an IC diet? That can be very important in controlling symptoms.

    Warm healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Welcome, EmmaJo, although I'm sorry you here because of your IC. Sounds like you're great at handling your problem and hope you'll soon get this burning under control. Have you thought of having your urine checked for a possible infection?

      Take care.
      Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

      11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
      8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
      8/2010 Surg gallbladder
      TREATMENTS (updated 4/15)
      IC Diet since 8/2009 (Able to vary 4/15)
      Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
      Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
      Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
      *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
      Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
      PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

      Comment


      • #4
        Iwas going to ask as well if you could possibly have an infection? I hope you find relief soon. There are so many helpful people on this message board.. andn support too!
        -Pammylynn Rose
        Wishing everyone a pain free bladder day!


        Painful symptoms start in May 2011
        Diagnosed with IC in Aug 2011

        MEDICATIONS
        Elmiron
        Axert (only for rare migraines)
        Strict IC diet
        Gluten/dairy/egg free diet


        Comment


        • #5
          Thanks Everyone for the welcome. The only diet I follow is trying to staying away from acidic foods. Many of times I went to the dr's with the bladder burning it never showed an infection. If it progresses I end up with fever and chills then I will go to the dr's. Thank for the advice

          Comment


          • #6
            I think there are topical creams for your urethra area and such but I don't know which ones they are.. I don't use any creams (yet). Maybe someone will post here about them.
            -Pammylynn Rose
            Wishing everyone a pain free bladder day!


            Painful symptoms start in May 2011
            Diagnosed with IC in Aug 2011

            MEDICATIONS
            Elmiron
            Axert (only for rare migraines)
            Strict IC diet
            Gluten/dairy/egg free diet


            Comment


            • #7
              Thanks I tried uristat before maybe I will try that its otc.

              Comment


              • #8
                I think AZO is an OTC medicine too. It is supposed to help relieve the burning, you take it orally. I will try that once I can find it at the stores around me. Good luck, hope you find some relief!
                -Pammylynn Rose
                Wishing everyone a pain free bladder day!


                Painful symptoms start in May 2011
                Diagnosed with IC in Aug 2011

                MEDICATIONS
                Elmiron
                Axert (only for rare migraines)
                Strict IC diet
                Gluten/dairy/egg free diet


                Comment

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