Hello everyone,
I am new to this forum and was recently diagnosed with IC. I have been struggling with IC for a long time and have seen countless doctors all claiming that they were UTI's or PID. I finally saw a specialist in OBGYN who said I have never had PID in my life and that it was all due to IC. He diagnosed me based on the potassium test and through all of my symptoms. I am finally getting the treatment I have needed since I was 16 (I am 23 now). I have struggled so much with sexual intercourse, urgency, pelvic pain, and frequency. My doctor has me on several different drugs and I was wondering if the drug regime I am on has helped others as well. I am taking elmiron (2 twice a day), cymbalta (60mg), prosed (as needed), tramadol (as needed), lydocaine (for sexual intercourse), and oxycodone (for after sex or as needed). I am married with two children and after I had my second child things seem to have gotten worse on the pain scale. Has that happened to anyone else? Also my doctor encouraged me to go on here and get advice on how your treatment plans have worked for you. He wanted me to get opinions on hyperdistension because he was thinking that would be our next step if the meds don't seem to be working and I'm still in a lot of pain. I also wanted to know what are the pain medications that have worked well for some people. The tramadol worked well for awhile but it has stopped being effective so I was curious what was effective for some of you. Thank you so much and I hope to get a few responses.
I am new to this forum and was recently diagnosed with IC. I have been struggling with IC for a long time and have seen countless doctors all claiming that they were UTI's or PID. I finally saw a specialist in OBGYN who said I have never had PID in my life and that it was all due to IC. He diagnosed me based on the potassium test and through all of my symptoms. I am finally getting the treatment I have needed since I was 16 (I am 23 now). I have struggled so much with sexual intercourse, urgency, pelvic pain, and frequency. My doctor has me on several different drugs and I was wondering if the drug regime I am on has helped others as well. I am taking elmiron (2 twice a day), cymbalta (60mg), prosed (as needed), tramadol (as needed), lydocaine (for sexual intercourse), and oxycodone (for after sex or as needed). I am married with two children and after I had my second child things seem to have gotten worse on the pain scale. Has that happened to anyone else? Also my doctor encouraged me to go on here and get advice on how your treatment plans have worked for you. He wanted me to get opinions on hyperdistension because he was thinking that would be our next step if the meds don't seem to be working and I'm still in a lot of pain. I also wanted to know what are the pain medications that have worked well for some people. The tramadol worked well for awhile but it has stopped being effective so I was curious what was effective for some of you. Thank you so much and I hope to get a few responses.
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