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Anyone had to care for one of these? I am having cystoscopy, bladder distension and coaptite injections the end of this week and am pretty nervous about having this cath.
Thanks,
Ronni
Thanks,
Ronni
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Try not to worry. Nursing staff will be sure you know how to care for yourself.
Sending gentle hugs,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
I am having a similar procedure next month (cystoscopy with injections) and I will have a normal catheter left in. At least I think it's a normal one! I am surprised to hear you need a suprapubic. Anyhow, I found this link that describes how to care for the suprapubic, hopefully it reassures you. Good luck!
http://www.google.com/imgres?imgurl=...ed=0CCkQ9QEwBQConditions:
IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10
; Ulcerative Colitis 4/12
Medications
Elmiron 3x day
Trazadone at bedtime
Tramadol as needed for pain
Monthly B-12 injections
Continuous Birth Control (even though I had a hyst, to control cysts)
heating pad, hot epsom salt baths, strict IC diet
Interstim implant 9/11
Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year
Failed Bladder Treatments
Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretchingComment
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